From my experiences, the only resource i have found is to have a job. It takes a very long time to be awarded SSI. In the meantime, you can apply for a job that isn't stressful and the employer has a heart and is understanding towards your health. Most companies find those of us with epilepsy as a high-risk employee and will Pass on such a person.

I agree @A MyEpilepsyTeam Member, I think contacting Epilepsy Foundation is a solution. I know disability is different state to state. I am currently looking into disability. It is a process. My doctor even said it is, and everyone who is filing for disability, should get a lawyer, there are some lawyers who will claim money after case is finished. Secondly, their are epilepsy programs out there that have work program, which I was optimistic about. Again, you have to try and get in contact with your hospital, and the social workers. Try and get a good doctor that will answer your questions, my hospital network, offered me free transportation to my appointments. I know it is more difficult for rural areas. I am still doing research. This is very difficult , trust me I am still investigating all of this.. Many blessings to all of you!!

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A MyEpile...

"building or block dedicated to fold with epilepsy...." What does that actually mean?

I was actually talking with some others, and the idea of a building or block dedicated to folk with epilepsy....

I lost everything when the big seizures went "generalized". The medical bills & drug costs broke me. A dear friend brought me in for a while, & now I'm back at the folks' property. It's not a bad place to be, yet I should be still living & working in Glenwood Spgs.... Ah, shit. Maybe it's supposed to be...