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Real members of MyEpilepsyTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Anyone Ever Have Epilepsy Brain Surgery? Can You Share Your Experience?

A MyEpilepsyTeam Member asked a question 💭
Pittsburgh, PA

Theyve been trying to get me to get epilepsy brain surgery for years the older I get the more I'm considering it as I'm seeing how it's affecting my life as an adult. I just want to hear other people who have already done it experiences so I know what I'm getting into. Did it completely cure you? Did your seizures get worse? Any mental changes in personality or mood? How painful was it? Etc.

July 4, 2022
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A MyEpilepsyTeam Member

I had surgery in fall of 2004 & it was very easy with no seizures for 5 years to the day. Hope this helps

July 5, 2023
A MyEpilepsyTeam Member

I had 3 brain surgeries. My first was "Radiation" or GAMMAKNIFE. It helped for some time. Then I had 2 Laser Surgeries. One June 15, 2017 and the other June 15, 2018. I was the first to get the surgery at the University of Michigan in 2017. I had to get a hole drilled in my head and a laser shot at my tumor for 6 hours. Both times I left at noon the next day and got the stitches out 2 days later. I have been seizure free since my last surgery in 2018 and I have had my Driver's License over 2 years now!

October 24, 2022
A MyEpilepsyTeam Member

I can tell you right now it is very very helpful I had two right temporal lobe lobectomies. I came down with epilepsy unknowing how when I was 15 yrs. old having a life threatening seizure I was Hospitalized for four months. I was having approximately 30 to 40 seizures a month losing bowel movement and having migraine headaches after each one. First brain surgery saved my life twice, narrowed my seizures to 3 or 4 , stopped losing bowel movements, narrowed headaches down did still have one after some but no where near what it was. After the surgery you do get migraines for about a week they give you Tylenol 3 meds to take care of that and it works. the second stopped getting headaches after seizures completely. I had 18% of my right temporal lobe was damaged they where able to remove 13% of it. The reason they where unable to remove that other 5% was because it wasn't dead brain tissue it still did do some work not as well as undamaged but if they removed it would make things worse. The 13% they did remove was completely dead brain tissue. The way it saved my life the 2nd time was 20yrs. after 1st surgery. I was hit by a speeding car going thru the windshield head first. That put me into a coma for a week with bleeding of the brain. After I came out of coma doctor told me I was lucky I had that surgery. He told me if I didn't have it I'd be comatose for life. Said that gave an area the blood from bleeding brain to drain. If it didn't it would have put so much compression on the brain I'd be comatose for life. I was also able to narrow decrease my seizures another 50% now having 1 or 2 a month. The way I did that was by getting a seizure service alert dog. The service dog may warn you of a seizure 1 to 1.5 hours before seizure, it isn't a 100% guarantee it will. But they can decrease how many seizures you have. That is what mine did for me she doesn't warn me of a seizure she did better I was having 3 to 4 a month I now have 1 or 2. The way she did that is decrease of stress, keeping me active, and other things. The things these dogs can do are amazing and they are very loving. some things they can do by command is funny to. You can tell the dog " Do Your Business" and the dog will poop right there, they love swimming. And follow you all around Showing extreme. amount of love!!!💝🦮💞

November 28, 2023
A MyEpilepsyTeam Member

Yes!! 1995 at the time very successful. Scar tissue removed from right temporlobe. Afterwards off all meds. For 10 years. 1 episode caused to be on 1 med since. Probably forever.

September 6, 2023
A MyEpilepsyTeam Member

I have had 3 brain surgeries. After my last surgery, I haven't had a seizure since. Mine was due to a rare HH tumor. Since the tumor couldn't be cut out, the laser surgeries killed what was causing my seizures in the tumor. Since the tumor is still there, I will have some of the same problems I have before my surgeries. It was painless and safe. I was released from the hospital at noon the next day! My memory is better than it's ever been in my life and I have more patience than I have ever had as well!

September 5, 2023

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