👋 Hi, I was wondering if anyone who has the <a href="/resources/vns-therapy-r-vs-the-rns-r-system-for-epilepsy-whats-the-difference?mht_campaign=62adba3df53528348ea79a80&mht_medium=keyword&mht_source=Question">RNS</a> could tell me how it feels and if enable you to get off some medication?

Mine was a <a href="/resources/vns-therapy-r-vs-the-rns-r-system-for-epilepsy-whats-the-difference?mht_campaign=62ae2289d9e5c872c2b5316d&mht_medium=keyword&mht_source=Answer">surgery</a>. They took away part of the brain that was damage. I only take one medicine and calcium. Now I'm seizure free.

I have the <a href="/resources/vns-therapy-r-vs-the-rns-r-system-for-epilepsy-whats-the-difference?mht_campaign=62ae77c77dea257529509c2a&mht_medium=keyword&mht_source=Answer">RNS</a> and I don’t feel anything. It does seem like I used to take more medicines but I doubt if they have gone down because of the <a href="/resources/vns-therapy-r-vs-the-rns-r-system-for-epilepsy-whats-the-difference?mht_campaign=62ae77c77dea257529509c2a&mht_medium=keyword&mht_source=Answer">RNS</a>. I have to hold a wand on my head each night to download brain activity. Then I hit send and the info goes to my doctors.

If I’m just going to be gone for a couple days the <a href="/resources/vns-therapy-r-vs-the-rns-r-system-for-epilepsy-whats-the-difference?mht_campaign=62af8897f535283f0bc18eb9&mht_medium=keyword&mht_source=Answer">RNS</a> will be able to store the information for that long. When I get home I’ll get on it and it will still load everything. If I will be gone for a while I can take it with me. It’s just as small as a laptop so I have a case to pack it in and take it along.

Hi @A MyEpilepsyTeam Member , Our team member @A MyEpilepsyTeam Member has the <a href="/resources/vns-therapy-r-vs-the-rns-r-system-for-epilepsy-whats-the-difference?mht_campaign=62ae28307dea250e11509c62&mht_medium=keyword&mht_source=Answer">RNS</a> & he can tell you about his experience with it if you wish to reach out to him. Your friend in Texas, Becky

I've always wondered about the <a href="/resources/vns-therapy-r-vs-the-rns-r-system-for-epilepsy-whats-the-difference?mht_campaign=62ae2d997dea251be3509ca3&mht_medium=keyword&mht_source=Answer">RNS</a>. My seizures happen often enough that I am on disability. I've never been recommended for this. I'm going to try and remember on my next neurologist appointment.

I was to have it a couple of years ago. They told Me That at least I would have to wait one year for <a href="/resources/vns-therapy-r-vs-the-rns-r-system-for-epilepsy-whats-the-difference?mht_campaign=62add2f37dea251d8d509c71&mht_medium=keyword&mht_source=Answer">RNS</a> Implant to settle inside Your brain.

Operation Of RNS System | MyEpilepsyTeam

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Operation Of RNS System

A MyEpilepsyTeam Member asked a question 💭

👋 Hi, I was wondering if anyone who has the RNS could tell me how it feels and if enable you to get off some medication?

posted June 18, 2022

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Mine was a surgery. They took away part of the brain that was damage. I only take one medicine and calcium. Now I'm seizure free.

posted June 18, 2022

I have the RNS and I don’t feel anything. It does seem like I used to take more medicines but I doubt if they have gone down because of the RNS. I have to hold a wand on my head each night to download brain activity. Then I hit send and the info goes to my doctors.

posted June 18, 2022 (edited)

If I’m just going to be gone for a couple days the RNS will be able to store the information for that long. When I get home I’ll get on it and it will still load everything. If I will be gone for a while I can take it with me. It’s just as small as a laptop so I have a case to pack it in and take it along.

posted June 19, 2022

I've always wondered about the RNS. My seizures happen often enough that I am on disability. I've never been recommended for this. I'm going to try and remember on my next neurologist appointment.

posted June 18, 2022

Hi @A MyEpilepsyTeam Member , Our team member @A MyEpilepsyTeam Member has the RNS & he can tell you about his experience with it if you wish to reach out to him. Your friend in Texas, Becky

posted June 18, 2022

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