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Real members of MyEpilepsyTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Operation Of RNS System

Operation Of RNS System

👋 Hi, I was wondering if anyone who has the RNS could tell me how it feels and if enable you to get off some medication?

A MyEpilepsyTeam Member said:

Mine was a surgery. They took away part of the brain that was damage. I only take one medicine and calcium. Now I'm seizure free.

posted about 2 months ago
A MyEpilepsyTeam Member said:

I have the RNS and I don’t feel anything. It does seem like I used to take more medicines but I doubt if they have gone down because of the RNS. I have to hold a wand on my head each night to download brain activity. Then I hit send and the info goes to my doctors.

edited, originally posted about 2 months ago
A MyEpilepsyTeam Member said:

If I’m just going to be gone for a couple days the RNS will be able to store the information for that long. When I get home I’ll get on it and it will still load everything. If I will be gone for a while I can take it with me. It’s just as small as a laptop so I have a case to pack it in and take it along.

posted about 2 months ago
A MyEpilepsyTeam Member said:

I've always wondered about the RNS. My seizures happen often enough that I am on disability. I've never been recommended for this. I'm going to try and remember on my next neurologist appointment.

posted about 2 months ago
A MyEpilepsyTeam Member said:

Hi @A MyEpilepsyTeam Member , Our team member @A MyEpilepsyTeam Member has the RNS & he can tell you about his experience with it if you wish to reach out to him. Your friend in Texas, Becky

posted about 2 months ago
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