👋 Hi, I was wondering if anyone who has the RNS could tell me how it feels and if enable you to get off some medication?
Mine was a surgery. They took away part of the brain that was damage. I only take one medicine and calcium. Now I'm seizure free.
I have the RNS and I don’t feel anything. It does seem like I used to take more medicines but I doubt if they have gone down because of the RNS. I have to hold a wand on my head each night to download brain activity. Then I hit send and the info goes to my doctors.
If I’m just going to be gone for a couple days the RNS will be able to store the information for that long. When I get home I’ll get on it and it will still load everything. If I will be gone for a while I can take it with me. It’s just as small as a laptop so I have a case to pack it in and take it along.
I've always wondered about the RNS. My seizures happen often enough that I am on disability. I've never been recommended for this. I'm going to try and remember on my next neurologist appointment.
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