I'm finding it hard to keep a relationship due to epilepsy I'm afraid to tell them incase they run or get freaked out over it. It's frightening any advice
When I first started dating the man I eventually married, I didn't tell him immediately. I probably told him on the third or fourth date. I'm sure your need to share the info could depend on how well… read more
I'm 18 years old and have had Absent seizures since I was 2. The many different medicines I have taken have not worked for me. More bad than good. all the side affects. My Dr. is suggesting a VNS. I'm really on the fence about this as it is life changing forever more. i would like to find people to talk with that has Absent seizures with a VNS that it has help and ones that has a VNS that it hasent help and now has to live withit for the rest of their lives. please help me out with your good or… read more
My son is 7 years old and he does not want to sleep by himself or with a sibling. He wants to sleep with my husband and I all the time. I am wondering is this normal or does it have to do with the epilepsy in some way or form. He says he is scared and just can't sleep on his own. This has been happening since he started having seizures in 2015 a little more now. Before seizures he slept on his own without a problem. He does sometimes complain about hearing noises and just about freaks out with… read more
It can, but probably because of how many people have fear around you. My parents have been so sheltered. Doing it for so many years, I think they’ve put some fear in me (which is something I’m… read more
Mine were called Partial Complex, then Absence, and now Partial Awareness. Not enough good sleep, not eating well or enough, stress and being overheated are triggers.
My day is good.
The following is information for Teachers about Epilepsy. It is very important and should be shared widely. I was diagnosed because my Teacher thought I was deliberately not paying attention in… read more
Have my first date tonight after being diagnosed. Not sure how/when to disclose that I have epilepsy or explain it, I'm very nervous about having a seizure in front of him.
Could anyone please give me some advice or tips? Thanks so much :)
Yes mind has been control 25 yrs sz free
I did but once comfortable with the person I was fine. I saw a therapist for a year as I was so scared of having a seizure in front of someone of in the middle of the road so found ways that if I did… read more
How do you go about telling your employer about your seizure disorder?? I have worked in manufacturing working a CNC machine and have worked in warehouses repacking parts or picking/stocking parts using a forklift. I take my medication faithfully and haven't had any grand mal seizures. I do occasionally have had staring spells, but nothing that affects my jobs.
I feel that if I reveal my condition I would be looked over in employment, be treated differently, or be passed up for promotions. I… read more
David, it is all about understanding them. I never got a job after I found out that I had Epilepsy and the patient's rights laws were in place. When I started working for Massachusetts General… read more
I just had a seizure in front of my aunt and her husband out of no where it was all caused by a firetruck and every time you have one do you apologize to everyone for having it
Yes, I'll be just sitting watching TV & out of the blue I'll have one. It is SCARRY but my husband always is supportive & is understanding!
Right after the seizures stop, boom? You cry?
Hang in there and try and stay pos, I can relate, I'm emotional but I handle accordingly,
I guess this is aimed at those with simple/complex partials.I also have absences ,which are the usual staring episodes .My automatisms include # 1tapping the wall/turning my head to left #2replying to a text when I know I can't communicate in writing #3answering the phone when it rings even though I know I can't communicate verbally #4 trying to answer the door when the bell rings ,These are things you do automatically when you're feeling well &due to your impaired awareness you still do these… read more
It is true if they know you they will just wait until you call back or they will call again to let you know you had a seizure.