Coeliac Disease | MyEpilepsyTeam

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Coeliac Disease
A MyEpilepsyTeam Member asked a question 💭

So because i keep getting mouth ulcers.. my dr thinks i might have coeliac disease.. can this have any link with epilepsy.. but i have noticed over the years i have started not being able to eat certain foods 😢.. so got to go for a blood test to see whats happening so i have wrote a list on what i can/cant eat at the monent

posted January 24, 2022
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A MyEpilepsyTeam Member

A couple of weeks for the coeliac results and a couple of days for the rest of the results

posted January 26, 2022
A MyEpilepsyTeam Member

Do yourself a favor though first of all get a second opinion don’t do anything hesitantly make sure you get a second opinion it’s your body before you do anything remember that and a second opinion is important just remember that I think the doctors a little on the naughty side were just so opinionated and I don’t care for them a little bit I go for a second opinion sometimes a third variety of personalities and sometimes you’re smart and sometimes you’re so stupid you don’t care for him real smart doctor I’m very intelligent sometimes you get people who don’t know what the crap you’re talking about yes I have Crohn’s disease and I didn’t know I just want to put something down on paper almost done with my insurance rates doctor said he thinks he might have Chris’s thanks OK I’ll send that to the main office rates a year later than they had to reimburse me all the rates high overrated stuff and they had to reimburse me for the following year and everything it was really good they were so stupid about it.

posted January 25, 2022
A MyEpilepsyTeam Member

Not sure but with me my mouth would get the kanker sores cold sores cracked constantly in the same places and reflux so bad I was scared to sleep. Eating was a fear as well. And there was so much I couldn't. My basic understanding is we need to eat and drink and sleep to survive. So if any of those is impaired we get ill or have weakness. So I had to get a deeper understanding of how to improve those areas. I started with water 1st as its the easiest for me. So I distill my own water. And eliminated all drinks with sugar and carbonation. Just that alone over a 3 month period I started with less sores and bad breath. So started examining diet within my ability to control I am low income so I have to eat so I am as fussy as I can afford so I meal plan which exhausts my brain. I have less reflux and am able to monitor when I have symptoms so if certain times of day or month are more symptomatic I look for a change such as less bread even when I crave it. Obvious bread thats manufactured is bad but for now I limit my useage until I can obtain the healthier ingredients and bake myself. And next is sleep which is a disaster for me still. But overall just those changes alone besides if I get dehydrated the sores are at a minimum now. So the digestive system needs to be examined for weakness and adjust as much as possible within your means. Removing processed food and purification of water are crucial to detoxing and healing. I am not an advisor so not going to get into supplements and detox programs or even efm or cell phone useage or 5g or dna and natural remedies etc. here. But addressing those basic things alone can have a huge positive impact on your health in general maybe even that specific concern. Hope that opinion can pop some ideas for you.

posted January 24, 2022
A MyEpilepsyTeam Member

Hopefully they will have some answers with these additional tests you had on yesterday in response to the unusual call on Saturday.
When you went yesterday for the blood tests, did they give you any idea when the results would be ready for your doctor?

posted January 26, 2022
A MyEpilepsyTeam Member

A couple of years maybe more so i stopped eating it obviously.. then it went to another then another then a couple of months ago it came to another thing but because they phoned me on a saturday and they dont usually phone on a saturday i didnt think to tell them until after i got off the phone..

posted January 26, 2022

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