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Real members of MyEpilepsyTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
Can Others Who Do Not Have Epilepsy Really Help And Understand?
A MyEpilepsyTeam Member asked a question 💭

I was diagnosed with epilepsy in 2012. My seizures are complex partial seizures. Complex partial seizures seem to affect your emotions, reactions and focus. The medication, along with a good neurologist has helped me a lot. My seizures are under control now. I say now because seizures never seem to be under control for the long term. Medication has to be changed, increased, etc. It is frustrating. All of my life, I have had a hard time making friends and have felt awkward socially. I think… read more

posted January 2, 2022
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A MyEpilepsyTeam Member

@A MyEpilepsyTeam Member, I know what your talking about. Almost every day, I have a song stuck in my head right now . It a novelty song and it’s also on a sound track, for a movie. It’s called “ CAUSE I’M A BLONDE “ .

posted January 10, 2022
A MyEpilepsyTeam Member


Actually, the whole discussion about who makes the decision on what is "normal" for a brain or anything else for that matter, was a discussion in Sociology 101 class. However, the history is an important lesson too. And yes, I can do the same with my "abnormal" epileptic brain.

posted January 8, 2022
A MyEpilepsyTeam Member

May the Lord cnontinue to watch over you my friend, and though the cross we all bear is strong., we never really die, its just time to come home. ♥️🤗

posted January 6, 2022
A MyEpilepsyTeam Member

Rehab studies always told me to get a job where you do the same thing over and over. I’ve been sacking groceries for 20 years and everything has worked out for me. Businesses aren’t allowed to fire anyone for having a mental disorder.

posted January 2, 2022
A MyEpilepsyTeam Member

I understand. I started having seizures consistently in my early teens. Just when I started to need a reason to feel socially awkward. And it has never stopped. (being awkward) Most of my seizures have been tonic clonic where I black out as it starts and have no memory until I wake up hours later. I have no family or close friends so I'm basically always alone. But my disease does not define me. I am and will be more than just a guy with epilepsy.

posted January 2, 2022 (edited)
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