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Can Others Who Do Not Have Epilepsy Really Help And Understand?

Can Others Who Do Not Have Epilepsy Really Help And Understand?

I was diagnosed with epilepsy in 2012. My seizures are complex partial seizures. Complex partial seizures seem to affect your emotions, reactions and focus. The medication, along with a good neurologist has helped me a lot. My seizures are under control now. I say now because seizures never seem to be under control for the long term. Medication has to be changed, increased, etc. It is frustrating. All of my life, I have had a hard time making friends and have felt awkward socially. I think… read more

A MyEpilepsyTeam Member said:

LOL!

Actually, the whole discussion about who makes the decision on what is "normal" for a brain or anything else for that matter, was a discussion in Sociology 101 class. However, the history is an important lesson too. And yes, I can do the same with my "abnormal" epileptic brain.

posted 5 months ago
A MyEpilepsyTeam Member said:

May the Lord cnontinue to watch over you my friend, and though the cross we all bear is strong., we never really die, its just time to come home. ♥️🤗

posted 5 months ago
A MyEpilepsyTeam Member said:

Rehab studies always told me to get a job where you do the same thing over and over. I’ve been sacking groceries for 20 years and everything has worked out for me. Businesses aren’t allowed to fire anyone for having a mental disorder.

posted 5 months ago
A MyEpilepsyTeam Member said:

I understand. I started having seizures consistently in my early teens. Just when I started to need a reason to feel socially awkward. And it has never stopped. (being awkward) Most of my seizures have been tonic clonic where I black out as it starts and have no memory until I wake up hours later. I have no family or close friends so I'm basically always alone. But my disease does not define me. I am and will be more than just a guy with epilepsy.

edited, originally posted 5 months ago
A MyEpilepsyTeam Member said:

What ever our cultures of medicine wants to call it. Know matter how our society want to see it, and no matter the reason for it. It's stilll a journey many with Epilepsy/seizures and its extended cormorbidities, will one day overcome it! Even in midst of so many stigmatized and missgiuded minds. Be the stronger., Even though it may be a harder way forwards. Gods blessings and strengths be with us all., in Jesus name I pray Amen.

edited, originally posted 5 months ago
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