@A MyEpilepsyTeam Member , Try going to these websites. I found a list of support groups with this first one I have listed & on the other site you might have to call or e-mail them to see if they offer any support groups or activities cause I couldn’t find anything. In the United States they offer a 24/7 telephone number for you to call if you ever need to talk but I couldn’t find anything like that on your websites but only you would know if you would be able to dial an 800 number in the United States & so if you want to try you’ll find that information at www.epilepsy.com . Here are the websites for you I found. www.epilepsy.org.uk & www.epilepsynewengland.org . I know our local Epilepsy Foundation has a therapist who I was able to speak with one day. I hope things get better for you & your seizures calm down. Sending Thoughts, Hugs & Prayers. Your friend in Texas, Becky

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A MyEpile...

I think it is much better in a group than one on - on. But that is just me!

Thank you guys, these afe all helpful i shall look into them. We do love our family but thwy dont understand what we feel every day. I woukd perfer having a 1-1 sessions not very confident in a group.

It’s so frustrating to hear, how people struggle proving that they have Epilepsy, to their families, friends and sometimes idiot Dr’s and nurses.

But I bet if any of us had leukemia, breast cancer, Alzheimer’s, dementia , Paralyzed, and ect, we would be noticed and shown sympathy. But because Epilepsy is one of those invisible conditions, the mainstream people , don’t believe us. They think we want attention, we are lying , imagining things, making excuses, or what ever they want to believe, other than the truth.

@A MyEpilepsyTeam Member my mum didn't believe me when I said I wasn't well I could feel something wasn't right with my body she told me if i was sick i wouldn't eat takeaway food i was pretty hurt and told her all that matters is that god knows the truth and that im not lying the seizures didn't start till a few a weeks later then after that she realised that it's real because why the hell would I fake being unwell give up my job, willing stop driving when that's the most favorite thing I like doing going for a drive, stay home 24/7 ,literally have no life.
I hope your husband changes his attitude towards you because no one wants to have epilepsy nor do they fake what they go through .

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