Connect with others who understand.

sign up log in
About MyEpilepsyTeam
Real members of MyEpilepsyTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Is There A Such Thing As A Partial Tonic Clinic

Is There A Such Thing As A Partial Tonic Clinic

I'm thinking I may have had one last Thursday I asked my fiancé what happened when he said I had a seizure he said my upper body was rigid and twitching I was making noices he said I was quite sore n totally wiped out for 3 days which is highly unlikely for me I get complex partial seizures days b4 this happened I saw flickers of light n smelled icky smells I told my nurse today n she just kinda laughed at me

A MyEpilepsyTeam Member said:

Hi! I’d certainly say it’s possible and happens. I’ve gone into such detail with consultants in the past as they don’t understand when I say ‘in the middle’ I can have a partial seizure that nearly goes into a tonic clonic but though the noises start and my body goes rigid I’m able to pull myself back without going into a state I can’t get back from. I think in 50 years they’ll be 5 more types that are documented to be honest. I’d say write down what you feel/experience and if you notice it happens multiple times have your own categories. I was once told I couldn’t be conscious during something, 3 months later I was told it’s extremely common with the meds I was on. Some highly recommended doctors/nurses still don’t know all the answers xx

posted 6 months ago
A MyEpilepsyTeam Member said:

To everone your seizures can change. When I was young I had absent seizures. as a grown-up I had complex partial seizures still have them but now thati fall back with complex partial and I don’t know what they are. I have the seizures that you have when you have menstrual cycle.

edited, originally posted 6 months ago
A MyEpilepsyTeam Member said:

@A MyEpilepsyTeam Member, I’m sorry to hear about how you were treated at the hospital. I’ve said before and I’ll say it again, there are many Dr.s and nurses, who aren’t educated on Epilepsy symptoms.

It shouldn’t even matter if you’re overdosed or not. It’s still an emergency and your in a life or death situation. And it shouldn’t matter if it’s a legal or illegal drug. Getting overdosed by your AED meds is also an emergency. It’s even gotten a little overdosed on my meds .

You may want to check on the laws in your area of Australia are. Over here in the U.S.A., not all our states have put in the law of treating people who are overdosed as an emergency, but should.

posted 6 months ago
A MyEpilepsyTeam Member said:

I'm sorry obviously she wasn't trained in seizure care

posted 6 months ago
A MyEpilepsyTeam Member said:

That is just 1 of the seizures I have and same things happen to me. The nurse should not have laughed at you. Problem is that they are not trained completely in all types of seizures. My son had to take me to a local hospital whilst having one. Nurse kicked me out thinking I was on some sort of drugs.

posted 6 months ago
Sponsored Content
Learn more about treatment options for partial seizures Read more >
Already a Member? Log in