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Real members of MyEpilepsyTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Non Convulsive Status Epilepticus

Non Convulsive Status Epilepticus

I was diagnosed with this several years ago I have focal onset partial seizures ,in clusters ,each week .The post ictal confusion lasts for 24 hours Has anyone else been diagnosed with this ?

A MyEpilepsyTeam Member said:

Have you talked with other members of the team who also have grand mal seizures to see if the fact that you are aware the whole time speeds up your recovery time after they are over compared to them?

Does that make you more or less stressed during the grand mal seizure because you are aware the entire way through but unable to prevent it?

The only seizures that are not absence seizures for me are the simple partial seizures. Once upon a time (definitely for some of the early full seizures back in the early 1980s in high school), I was at least partially aware. However, now not only do I not have an aura prior to a complex partial or full seizure, but they are complete absence seizures, thus my conscious mind is not back in the driver's seat until I have gotten up off the ground and moved on to where ever is next. The only good news is that my subconscious mind is very cooperative, thus will follow instructions (to go sit down on the couch or go lie down in my bed -- depending upon where and when the seizure happened), but unless there is a witness to one of these seizures, I have no idea that they happened --though am confused as to where the extra body pain came from.

posted 11 months ago
A MyEpilepsyTeam Member said:

Have been on a Disability trip & met 2 other people with epilepsy, one starting with v … & the young lady was with me & the female leader & she just would shake. But we tried to tell her if we hold her arm & magically she would stop shaking. The leaders even where surprised! A good way to make friends even though I was always cleaning my hands!

posted 9 months ago
A MyEpilepsyTeam Member said:

@A MyEpilepsyTeam Member Sorry to hear that! I hope you got as much details as possible from your mom and shared it with your neurologist.

Never forget there are many types of Epileptic seizures (and more that are non-Epileptic seizures) and that the Epileptic seizures can mutate at any time and additional auras, seizures, triggers, etc. can be added over time. So, just keep sharing the details with your neurologist and asking questions from your neurologist. And if you want more details about something specific, then let us know because some of us are very good in research to find reliable information from the professionals from the best sources on any health topics and even some non-health topics too.

posted 9 months ago
A MyEpilepsyTeam Member said:

You keep your eye on the dog an how he is with you on days that your alright an sometime you might find him act differently it could be he detects something is different in your sent that their is one on the way are dog could sense one coming it is well known

posted 10 months ago
A MyEpilepsyTeam Member said:

Right

posted 11 months ago
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