Have you talked with other members of the team who also have grand mal seizures to see if the fact that you are aware the whole time speeds up your recovery time after they are over compared to them?

Does that make you more or less stressed during the grand mal seizure because you are aware the entire way through but unable to prevent it?

The only seizures that are not absence seizures for me are the simple partial seizures. Once upon a time (definitely for some of the early full seizures back in the early 1980s in high school), I was at least partially aware. However, now not only do I not have an aura prior to a complex partial or full seizure, but they are complete absence seizures, thus my conscious mind is not back in the driver's seat until I have gotten up off the ground and moved on to where ever is next. The only good news is that my subconscious mind is very cooperative, thus will follow instructions (to go sit down on the couch or go lie down in my bed -- depending upon where and when the seizure happened), but unless there is a witness to one of these seizures, I have no idea that they happened --though am confused as to where the extra body pain came from.

Have been on a Disability trip & met 2 other people with epilepsy, one starting with v … & the young lady was with me & the female leader & she just would shake. But we tried to tell her if we hold her arm & magically she would stop shaking. The leaders even where surprised! A good way to make friends even though I was always cleaning my hands!

I take grand Mal an told my specialist that I am aware right through them he said it is rare but some people have that type off grand Mal it started like that when I was around 13 before I had normal ones was not aware I think it started being aware when my hand was burned on the side off the fire place

I have focal onset clusters and have been suspicious of status but never diagnosed. I sure know how focal clusters suck especially when there's only minutes between them and you're not sure they've completely ended until the next starts up.

Post-ictal that long sucks to - what kind of symptoms do you have with that? Did you get a rescue med to stop the clusters and the status? My clonazapam rescue has not been working so well lately. So sorry you have to deal with those seizures and clusters.

A lot of people think focal seizures are mild but a couple of my friends with tonic clonics say the focal ones are at least as bad because they're terrifying and you're aware and remember them unlike most TCs. Lets just say all seizures suck.

It is being aware during the beginning of the seizure I have grand mal an a aware right through it but I have sometimes I twitch or stutter that could be classified as focal epilepsy