Im a country kid so this app stuff and all the doctors fancy talk never really concerned me. Im 16 and had 9 grand mal seizures over the course of a year. That can scare parents and doctors so they loaded me up on keppra, more than the max advised for my body weight and size. Partly because I have myoclonic seizures too. Well i had the initial major depressive episode and fought that shit hard, only regret is not letting anyone know. If i learned anything though is to not take those side effects… read more
Thanks a lot, really. As much as i’d agree with the side effects being damaging, there just isn’t much my family can handle about all that right now. But ill try the things randy suggested, might actually help me
@A MyEpilepsyTeam Member I understand not wanting to have more seizures. My daughter has Grand Mal seizures. And each one I’ve witnessed is gut wrenching to watch and she’s completely wiped out from them. So I get the fear. I just worry with you being so young that the side effects could be damaging to you. But this is your process and your feeling. I wish you nothing but the best. And hope you find something that helps you get through it. Please reach out if you need someone to talk to. That’s what we are all here for. 💜
Sound like your experiencing one of the common side effects .the would be slow motor skills, struggles with memory, struggle with getting your words out, maybe stuttering and other things that deal with your motor skills.
You have try and retrain your brain. You still won’t go back to 100%,but could improve better. Do some word spellings/word puzzles. Play timed games, test your math skills out now and then, play memory type games and other cognitive games.
Today I’m in my 40 and I struggle with some basic math, that I once was alright at doing. Today I either struggle or just totally forgot how to solve the problems.
Well im scared to confront my parents or doctors about that stuff cause for all I know a med change could cause a seizure. And at 9 im getting pretty close to having a stroke my next one. Plus school and work and all the other stuff i do comes to a halt when i have one. So switching is just not really a risk I want to take until my life and family is a little more stable
Hello. Wow your 16. My daughter will be 16 at the end of this month. We started on Keppra and it didn’t work. She is now on Zonisamide and at first that didn’t help completely. We changed her dose to some at night and 1 in the morning. And we’ve been about 99.9% good since March 9th. She was diagnosed with JME. Have you tried switching your medication or adding maybe 1 with the Keppra so it’s not so high. My daughter didn’t like how the Keppra made her feel either.