I take an anticonvulsant seizure medicine called Lamotrogine (generic for Lamictal). They do seem to control the grand mal seizures. However, I still do experience strange feelings from time to time off and on throughout the day; not everyday but still, a LOT of the times, at any given time. I also experience spontaneous jerks of either a hand, a foot, any limb or sometimes my whole body. But it ends just as quickly as it began. Sometimes, I'll "space out" and kinda feel like noises near me are… read more
@A MyEpilepsyTeam Member
Let me tell you what I have experienced. I’ve had different types of seizures for 37 years and in 2008 I had my first grandma seizure. I do not have all the feelings you do, My grandma seizures are like having convulsions shaking, gagging and unconscious fighting people off trying to hold me down.
I was told by my neurologist There are different ways you go when you have a grand mal seizure. I’ve never seen different but OK doctor??
Now the only reason and why I will have a grandma seizure is if I don’t have Lamictal in my system. I do not know what is in that pill that does it for me, but it controls the grandma seizures very well for me. I haven’t had a grandma seizure for a long time because I will not screw up just that one pill ever again. I don’t know how you would respond with the Lamictal because everyone is different with medication, sometimes they’re good for people and sometimes they’re horrible for people I’ve experienced it. But if you do want to experienced the Lamictal I would talk to your neurologist about it if you’re capable of taking that medication with all your other medication because apparently from what my doctor has told me because I wanted to try medication‘s with what I am taking now she told me you can’t mess with medication‘s together it depends on what it is. But if you can work with the Lamictal it’s your decision on if you want to try it but you have to give it time and go from there. Good luck! If you want to talk more I am here💜
there is a boatload meds that covers all sorta seizures. my keppra is a partial seizure med. anyway... i have 3-4 types of seizures. i think you have an aura seizure. ask your dr about that one.
i have a new youtube channel and i cover seizure stuff. anyway one of my videos was on the partial seizures. https://www.youtube.com/watch?v=JV88yyMO3o8&...
That's exactly what happens to me when I feel a seizure coming-going &
of course it's scary . Your meds are helping to make sure you don't have
a grand one.is why the feeling leaves. I may get angry or sad from them
but always know it won't get worse thanks to my meds When brain misses
a beat the subconscious takes over our vital functions but regular thought
can't function. Like dreaming while awake sensation, emotions out of control. Then
suddenly it's over and we're fine-like you will be too. You wouldn't believe how some
reacted years ago .Alice in Wonderderland was inspired by Lewis Carroll's seizures-
talk about a crazy weird world..
. . . .
@A MyEpilepsyTeam Member ... @A MyEpilepsyTeam Member is right, we all go through different experiences. drs are vary important but you need to get the right ones. for me, i have been hired and fired drs a thousand times over (more than i can count) until the right combo of drs. some will snatch the right dr, right off the bat. that is why i made this youtube channel... to educate people when drs don't know the answer or hiding the anwer with complex words. with my channel, i am just relaying what my many MANY drs have said over the years/decades (fired, retired, or hired).
@A MyEpilepsyTeam Member
Yes that is true you don’t want to mess with medication, but if you’re having issues and want a answer from people on this website you’re going to get an answer because people want to help each other. And yes talk to the doctor figure it out with them so you can get where you need and want to be to get your seizures under control if you can. And yes I have told my story to the girl who asked the question, they don’t have to follow my story or think it’s useful, but apparently she thinks it’s useful. And you don’t have to give me a lecture if you don’t like my answer @A MyEpilepsyTeam Member ignore it. You’re not the one who wanted an answer.
People want advice and answers..That’s what we do for each other on this website. Have a good day
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