I think that’s the normal response you get some people who don’t understand anything about epilepsy or seizures or the best one is you ok you must be ok and there is nothing wrong with you there is so many types of epilepsy I once was at college and I seen someone on the ground having a seizure or she was coming out of it and people were putting her in the recovery position I thought that was the only type of epilepsy until I was diagnosed myself and learned there was lots more x x

@A MyEpilepsyTeam Member your right it’s sad when people’s loved ones turn their back on you when you need them all I can say about that is pray for them you’ve got to take care of yourself and your also right about karma too I wonder if they come running to you when they need you sometimes you have to distance yourself from them some might come back when they understand epilepsy more who knows x x

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A MyEpile...

First of all I’m sorry about the many struggles your experiencing . It so saddens ☹️ me and frustrates me, when I hear about the many people who loose their support through their family, spouses / fiancé and friends. It’s worse when it’s the members of your BLOOD 🩸. It their responsibility to help support members out , no matter what type of pickle your in. Whether it be health, financial, food, teaching us consequences,when we do wrong, and the two biggest ones are loving 🥰 and Caring for us. Sooner or later in their life it’s going to be their turn , for some taking over the responsibility, because they are too old. What then ? I guess , like they say “What goes around, comes around “.

Prayers that you can find the enlightened path of more supportive people, beginning with us.

Hi Margery, The only one of them that understand me was mum. She is so lovely. 95 in June She is in a care home now no dementia and sense of humour get on so well with the carers. She kept falling and.sent to hospital and I tell friends that I'm epileptic and I got a lot of support.. I've had a few jobs and told them and they still gave me the job
Sorry about the length of reply. God Bless and hope you have a seizure free day.Take care
Sue xxx

I can relate to that. I think my family & friends think that I haven't got a brain because of the Epilepsy. My brother I did some thing for financial dealing and he was.shocked that I did it. He told mum and she said of course she can she's worked in a solicitors and dealt with the tax office