I had my first seizure Oct.31,2016 so ik what you mean its super scary sometimes i feel do hopeless but i try to stay positive bc stress is on of my triggers😬 but i get you💯

I was diagnosed 2018 at 50 years old. I am still learning. I had had three tonic clonic seizures (i lose consciousness) and have no warning. The last one I am still recovering from the physical damage it did. Doctor said it will be about a year before I am 100%. I continue to have Focal seizures (where I do not lose consciousness) and trying to get them under control. I am so sorry and completely understand the confusion and fear. The doctors said i was born with epilepsy and cannot believe I didnt have any seizures as a child and it was most likely brought on by hormones.

I’ll phone and talk to my mum I always feel better talking to my mum and then I’ll lose myself watching tv or reading a good book we all have our good days and bad days I talk to my mum as often as I can because right now I can’t physically see her because I’m in lockdown so it’s FaceTime calls just now and I miss her sometimes I talk out my feelings out loud or I’ll have another cry or if I’ve had a seizure I’m sleeping or I can just go for a nap and hopefully I’ll feel a bit better when I wake up x x

I have been seizure free for over a year now, but before that I was averaging a seizure a fortnight for 10 years. They told me that I had a 5% chance of ever getting control. So don't give up, and don't think taht just because people are positive now that they are always like that. Many people who seem positive on the outside share your troubles more than you think

@A MyEpilepsyTeam Member Stress seems to be one of mine too.
But I’ve had anxiety since early high school too. It got worse every year through all of bschool and Uni. So, lots of stress. Not enough coping mechanisms.

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