Hi Maureen. I think I'm adjusting okay to the epilepsy now. Listening to my body. Accepting that this is part of my life now. Not focusing on why. Talking with all of you. I'm enjoying slowing down, but not enjoying slowing down this much b/c of COVID. I can't go anywhere or do anything b/c so much is shut down (which I do support given the circumstances). I'm now 5 months seizure free and would normally be looking forward to driving again maybe after 6 months or a year. Even if I get to drive again, where would I go? My husband drives, but still we have no place to go.

I'm just really bored. Every day is basically the same. Get up, take pills, get breakfast, make some coffee, unload the dishwasher, reload the dishwasher. Then try to figure out what to do with the next 12 hours. I have gone on some walks with friends or talked to people on the phone, but there isn't that much to talk about other than our election and COVID, both of which are stressful. I watch TV, exercise about 3x a week at this point, and try not to binge eat. This week I started listening to the podcast Serial. For some reason, I like murder mysteries.

But I do know this won't be forever and we will be able to enjoy life again.

@A MyEpilepsyTeam Member I’m glad you didn’t get divorced and your right this year sucks since March now just not being long diagnosed it’s a sucker punch your going through a lot of emotions that enough is enough we can’t help this virus but we can control our epilepsy a bit better by not letting it control us and live our life’s we are human we are going to bad days with too many seizures but they don’t have to be you just go to sleep because your body is tired or read garden watch tv it does get easier the good days happen as well we might have 1 seizure it’s sunny you can relax read listen to music or an audiobook go about our business epilepsy is an invisible condition it drives you nuts sometimes take care and stay safe x x

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A MyEpile...

OMG, I'm glad that it was a dream and not reality!

I've been having weird dreams lately too. I assume it's because of the Rexulti that we added for the depression. I often wake up and don't know if the dream was real or not.

I can't really make myself read. Difficult to focus, but otherwise I'm good with TV, movies, and trying to get back to exercising. Depression is slightly better so I'm talking with friends on the phone again. Still not easy for me, but now I can make myself answer the phone.

You let your neurologist know about a seizure a few days before you saw the dr. The dr. Will need to ask you a few questions about the seizure and how you felt afterwards, before the dr can explain anything about the seizure or what kind of seizure it was. Since they were not there to see you have it. So No, not only a dr can explain the seizure and not all seizures are the same. But one of us may have had a seizure simular to another one in here and that is why they give us the right to ask questions. Some of us have had many different seizures and it is easier to ask us than a neurologist who hasn't had one to know how the pain and etc feels.

My auras happen during the morning and sometimes wakes me up.That is the warning I know a major seizure is coming later that day or night.Usually right at sunset and later.So I am just like you.