Powered By
Does Anyone Elses VNS Hurt When You Run The Magnet Across It?
I got a VNS in 2017 and whenever i run the magnet across it it chokes me and hurts my chin and the left side of my head. I've told my Dr about it and he just turned it down. I've avoided using it because it scares me when it chokes me! It still goes off every 5 minutes and that doesn't hurt since my Dr lowered it's power but it still hurts with the magnet.
Your VNS stimulater the Dr or
the nurse who knows about it ask questions to her too
Your Dr should know what type of seizure you get ask your Dr questions about it ask
@A MyEpilepsyTeam Member Ritta.. One are inside my brain because it's a rare and big trama inside the brain the neropace I.E. VNS. Is placed on the scalp just under the skin. My case was because it was coming from 2 places deep inside my brain.
When I had my VNS (had it taken it due to it no longer working and needing several MRIs), it was uncomfortable to swipe the magnet. I wouldn't say it was painful exactly, but it was rather uncomfortable when it was at the highest setting. I could feel it all the way into my teeth! It was worth it the time that I had it, I just wish it would have continued working longer than it did. The battery didn't die or anything it just seemed to stop controlling the seizures as well after the first year I had it. Still glad I gave it a try. Also that being said, I've been through much more painful things (migraines, cluster headaches, kidney stones), so my idea of pain is a bit different compared to what I felt from the 30 second "shock" of the VNS. The discomfort wasn't horrific by any means, at most I might have cringed when I swiped it.
@A MyEpilepsyTeam Member Ritta. Thanks everything happens for a reason it was double pneumonia that caused the trama happened when I was 5 and caused the sezuires. And as I said everything happens for a reason I've done a few things that I believe why am still alive. I saved a life with my friends and my story has inspired people so am here to educate people on epilepsy and epilipsy wit sezuire disorder.
Join
A MyEpile...
