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My Daughter Had A Right Temporal Lobectomy A Week Ago She Is Experiencing Light Sensitivity Has Anyone Else Had That Experience

My Daughter Had A Right Temporal Lobectomy A Week Ago She Is Experiencing Light Sensitivity Has Anyone Else Had That Experience

She has a normal headache pain near the incision and the right side of her head black eye bruising but the light sensitivity is severe and I can't find anywhere where anyone has experienced that.

A MyEpilepsyTeam Member said:

any brain surgery needs to recover. it will take months. mine was almost 2-3 months. i too had sensitivity after the surgery but that went away in a couple of days. some take longer. just track it and write it down. when the dr appt arrives talk about it.

posted 10 months ago
A MyEpilepsyTeam Member said:

You have migraines they can do a lot to you check with your doctor

posted 10 months ago
A MyEpilepsyTeam Member said:

I have severe light sensitivity. Even sunglasses dont help or shade really. I cant even be underneath certain kinds of lights which tend to be led ones in restaurants churches or the like( they are popular now days) it makes me sick to my stomach, dizzy, my head and brain hurt and i get shooting pains. I have to when the sun is shining bright out here in florida just cover my head the best possible and sometimes walk around with my eyes shut alot. And my hands over my eyes although like i said even hats and sunglasses dont seem to help. Blinking lights can cause me to have seizures and headlights from cars make me go blind and not be able to see for up to 8 minutes some times same with flashlights and such. I have sat under lights or been in stores and literally vomited because of it and or collapsed and had to crawl somewhere with more shade. I am more careful and try to shop until i know its unsafe and crouch where i can in darker areas or even sit down and put my sweater over my head. Ive never had brain surgery because im not a candidate due to the risks involving my nerve and brain reactions and seizure severity. I live with it somehow and its hard but i stay determined to anyways

posted 10 months ago
A MyEpilepsyTeam Member said:

I have intense light sensitivity from other neuro issues. I wear a hat and wrap-around sunglasses. Also, my optometrist gave me some colored lenses to wear 10 minutes a day which helped me at first.

posted 10 months ago
A MyEpilepsyTeam Member said:

Continue telling your doctor about it and have him check into it, I never had that kind of surgery done I have a vns

posted 10 months ago
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