Connect with others who understand.

sign up log in
About MyEpilepsyTeam
Real members of MyEpilepsyTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Patterns Of Clusters

Patterns Of Clusters

I have clusters of partialfor 24 hours every week eg. A Tuesday will wipe me out ,so will the Tuesdays after for month let's say The day will then shift back to a Monday for a while I'm 62 & was diagnosed 40 years ago They weren't so frequent then, the day might be once every 6 months Does anyone else have a pattern to their seizures like this?

A MyEpilepsyTeam Member said:

Bryan I had that surgery also. I'm seizure free now but never got rid of the fear of not understanding thing. I forget a lot so I can get depressed at times. I had someone tell me I don't belong here because I'm seizure free.

posted over 2 years ago
A MyEpilepsyTeam Member said:

The rescue remedy I have is Clonazepam (Klonopin) that disolves under my tongue. It has a similar name to but is not the same as Clobazam (Onfi) if that matters. Last cluster I had to take 3 doses to stop it. I sure hope you get this figured out so you don't have to suffer so much.

posted over 2 years ago
A MyEpilepsyTeam Member said:

When I was a kid to teens it was always around this time a year only. Now because I had surgery & they came back as grand mals which I never had before. They seem it come special times in the month due to hormones & I have hard times speaking & little things but take my emergency pill for it. Hopefully things will get better.

posted over 2 years ago
A MyEpilepsyTeam Member said:

i had a pattern. i had seizures every hour or 2 hours (before the surgery). after surgery i had seizures right before bed. now i am seizure free if i take cbd oil.

posted over 2 years ago
A MyEpilepsyTeam Member said:

I have had clusters of simple partial (focal aware), but never (except when the pharmacist messed up and poisoned me) clusters of complex partial or full seizures.

In the last several months, I have entered a good cycle of such that I have not had any clusters of simple partial seizures, but I have had some evenings where I have a single powerful simple partial seizure--so much so that it makes me dizzy and disoriented besides the usual effects of having an aura/simple partial seizure. When I have these powerful ones, I need to check with someone in the room to find out if I just had a complex partial seizure too. In each of these cases, there is nothing (no complex or full seizure) beside it. However, it takes a few hours to fully recover from it.
When I start having the clusters of auras/simple partial seizures--and I am not successful in calming my brain and stopping them (which I have only had success with this in September and October when I last had any clusters), then I tend to flee to sleep to end the barrage. If I cannot get to sleep fast enough, then I am wiped out after the clusters eventually end. The good news is that between April and September, I was down to usually one cluster day a month, and the last two months I have had none.

posted over 2 years ago
Already a Member? Log in