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Question

My neurologist wants to put me on EPIDIOLEX. Does anybody have any experience with this medication. I would love to hear your reviews and experiences. Good or bad.

A MyEpilepsyTeam Member said:

All due respect, but don't EVER go to webmd.com for factual information. Nearly every road leads to a Cancer diagnosis. Instead, if you want relevant, factual information you should, in my opinion, go to www.mayoclinic.org. They have a symptom checker and have never come up short when I've needed to research something... this medication included. Just sayin' Y'all stay health. Much love!

posted about 1 year ago
A MyEpilepsyTeam Member said:

@A MyEpilepsyTeam Member this epidiolex is just cbd oil (a part of the marijuana plant). there is different amounts. anyway, i take another cbd oil called koi (like the fish). 500mg and a 1/2 a measuring dropper every night (with meds). it works wonders. i used to have um a couple a day. now i am seizure free (if i take my oil). no side effects.

posted about 1 year ago
A MyEpilepsyTeam Member said:

I'm on Epidiolex. My doctor just raised my dose on that medication. The only side effect I encountered was sleepiness but that was until my body got used to the increase dosage of medicine

posted about 1 year ago
A MyEpilepsyTeam Member said:

I have never heard of it go to Web MD and look it up

posted about 1 year ago
A MyEpilepsyTeam Member said:

@Churcham. I can tell you from professional experience (14 years doing interlibrary loan work for Massachusetts General Hospital--and getting at least article, chapter, book, etc. request filled for MGH doctors from sources on 6 of the 7 continents--no filling requests down in Antarctica) that PDR is fine if you don't have access to the Internet. However, the US National Library of Medicine has everything that PDR has and much more and up-to-date (NLM is the first institution in the USA to get copies of every medical resource and those of the biomedical sources).

posted 9 months ago
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