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In Home EEG Sleep Ambulatory?
A MyEpilepsyTeam Member asked a question 💭

Hi everyone hope you are well💜
I'm curious and would like input in the past I've had ambulatory EEG. Next weekend they have ordered an in home ambulatory EEG sleep test apparently a tech will install cameras and of course I will have to wear the electrodes(the whole ambulatory bit) anything else I should expect? Uncharted territory for me anyone underwent this before?

All My Best,

-Lisa

posted October 18, 2019
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A MyEpilepsyTeam Member

My problem was when i did mine i was in the hospital for a week which was like a vacation for me. I had beautiful nurses always coming to check on me and got to lay in a bed that adjusted and had all my meal brought to me. So my eeg was negetive and showed no signs even when they took me off rhe meds for a day. I told them they should of had me off the meds before i even went to the hospital. Then they also tried to deprive me of sleep that didnt work either cause i was so comfortable. If they wanted me to have a seuzure the should of had me working with my mom standing behind me.

posted October 22, 2019
A MyEpilepsyTeam Member

The only unusual part should be the camera presence (hoping to catch one of your seizures on film besides the EEG). I had a portable EEG for a day when I first went to my original neurologist. As long as you have no problem sleeping with the electrodes attach and can ignore the camera and the apparent need for light on, then you should have no problem. I went to the neurologist the following day and had the probes removed, and they had recorded at least one seizure.

posted October 20, 2019
A MyEpilepsyTeam Member

With my at home video EEG I always had to have the camera on me except the bathroom. At night I had to have my lamp on so I could be seen in the video & it was hard to sleep with my lamp on & I doubt I did. My seizures are pretty much under control with the help of my medicine & so I didn’t have one during that but you’d know days later I think I did. In July I did another at home EEG but without the video. For that one, every time I had some kind of symptom then I had to push a button that was hooked up to the meter & electrodes thing. For this one I also had to write down the date & time & what symptom I had. I didn’t have any seizures during that one but apparently the test results showed it was abnormal all the way across. It seems that at home EEGs tend to show more seizure activity in me compared to a regular in office regular in office EEG. I hope you don’t have a rough time getting the glue out afterwards. We all hate that part! Luckily, I was at a different doctor’s office this last time & apparently the EEG Tech really new how to help get that glue out. Don’t know if this was any help. Good luck! You might just plan on staying home during the video EEG. Mine lasted 3 days. They had me continue taking my medicine. Good luck. Your friend in Texas, Becky

posted October 18, 2019
A MyEpilepsyTeam Member

It should help because of the extra stress from having the portable EEG and the camera should give you a very good chance of having a seizure while you have the portable EEG on.

However, if you know your triggers and want to guarantee success, then try to increase the number of triggers for that night.

For example, I am a perfectionist and am driven to make things the best possible for friends and family. And I don't like speaking in front of crowds. However, I was the best man for two weddings (my older brother and my best friend). So, when I was hooked up to the EEG, I borrowed and watched the video from the wedding receptions with me giving my toast. I know that feeling bad because I did not do as well as I had hoped while giving those toasts would trigger a seizure, and it did (at least one).

If you do not know your other triggers, then use stress (it is a common trigger) to trigger a seizure. If nothing else comes to mind, then just get yourself worried about failure to have a seizure while attached to the portable EEG. This should help raise your stress level.

posted October 20, 2019
A MyEpilepsyTeam Member

Thank you! Very helpful hoping this helps because the frequency of my seizures have increased

posted October 20, 2019

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