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I no longer have these, but it used to be a common occurrence. I know there are many, many types of seizures but have never found one that fits what used to happen to me. Can anyone tell me what this is??
* It lasted an entire day. From the time I woke up until I went to bed at night. Usually about 13-16 hours. Was always fine the next day
* I was always conscious.
* Never extra tired.
* No twitches. No pain or even physical discomfort of any kind.
* Most people didn't know anything… read more
Im truly sorry that you are going through this. I can say Ive never experienced what you are going through. I have Pseudoseizures (look like petit & grand mal), actual Grand mal, aura’s sometimes shaking, smelling beach.
I have memory loss from the now-trouble with yesterday, but better with 49 years ago. Was diagnosed 49 years ago of Petit mal & put on meds-found out that I was misdiagnosed & believed I actually have autism instead.
As ling as you arent aline & your care team-dr., family member & you all work together to help you—then you will het thru this ma’am.
@A MyEpilepsyTeam Member focal onset of any kind last anywhere from a second to 10 minutes or more. my auras into focal onset awareness into focal onset impaired awareness last me a couple of seconds. but when i was a kid it last me a few minutes. maybe 5 minutes. some auras last for hours. its up to the person. and RandySherman is right it could be both side. focal onset just mean 1 side of the brain is affected while generalized means both sides of the brain. you could be aware and have generalized seizures.
Omg ,I think we are the same person I have cluster seizures ( I'm 62) which last 24 hours ,every single week. I have impaired awareness ,also aphasia- inability to communicate which is frustrating as I'm a retired speech & language therapist My family are grown up & they call it ' the lights are on but there's no one home ' On these days ,if they're really bad I may have automatisms eg walking round in circles, tapping , I cannot even add 3+3, or strategies to work out the sum.I don't lose consciousness but this day greatly affects my ability to do basic tasks Can't even use the remote for the TV They gave me buccal midazalam in a string a few back My daughter is a carer & showed me how to use it It wouldn't sink into my cheeks + would collect in my mouth.I used to gag & spit it out IT WAS THE MOST VILE STUFF- I had to be handed the syringe as my brain wouldn't think ' oh ,I must take my medication' I was diagnosed 41 years ago ,had the odd grand mall but these days would occur ,every 6 months How I would love that now ( you name the drug combo & I've been knit Take care I'll try to add you to my team
I was thinking aura seizure, or partial. I get those almost everyday. I usually have to have something ice cold around me to calm me down though.
i have complex partials (focal onset impaired awareness) and it looks like you have (or had) an aura (a seizure that warns you about the seizure) into a partial seizure. there is many kinds of aura. and the partial part is you can remember until it is over.
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