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Coffee

Coffee

I noticed that a lot of my epilepsy friends around the world, especially in the US, wake up to a strong coffee. Knowing this is a key trigger for seizures, why do you still drink it?

A MyEpilepsyTeam Member said:

Darryl, My personal opinion is that if we avoided everything that’s a potential trigger, we will be very sheltered. You have to get to know your illness not Shiela or bobs illness (hypothetical names). It’s a bit like saying everyone with epilepsy should avoid strobes although we all know that only affects a percentage of us. Although we learn the hard way, we have to know our own triggers as it helps us get a better understanding of how epilepsy effects us personally so we can carry on living meaningful lives around the epilepsy x

edited, originally posted almost 3 years ago
A MyEpilepsyTeam Member said:

Darryl, for me my main triggers are lack of sleep and stress. I can drink coffee on any normal day. But it is possible that coffee combined with a stressful day or a lack of sleep day will trigger more seizures.

edited, originally posted almost 3 years ago
A MyEpilepsyTeam Member said:

Yeah most people realize chocolate was a medicine before it was the tasty treat we now have. It was used a pain reliever and a basic cure all.

posted almost 3 years ago
A MyEpilepsyTeam Member said:

Hmmm... the risk of stroke is increased but doesn’t directly cause a stroke unless you’re knocking back 20 coffees at once.
Depending on the brand of coffee, there tends to not be a lot of caffeine in coffee anyway. Honestly Darryl hun, it’s good to be curious but overthinking isn’t great, it can take your mind into wonderful places. I overthink when low so I’m not just talking as a mental health professional but also from experience.

Everyone does what’s right for them. As we can see, coffee for these individuals doesn’t trigger a stroke or seizures- it may not be great for you personally but we’re all individuals.
Worry less, live more- that’s my motto :)

posted almost 3 years ago
A MyEpilepsyTeam Member said:

Caffeine sure can give you a temporary energy. Lectins such as things in soy products and what and grass stuff lowers energy significantly. Some of us with higher stronger responses in our brains out of whack lol or just plain outright electrifying can get a sudden turbo energy due to caffeine or sugars and even false energy drinks that can make us sorry while it doesn't effect others. Polyphenols hope im spellin that right allong with vitams a b c d and a proteins and certain minerals are actually a longer lasting energy boost and helpfull to our immune and brain system function. Sorry everyone they put me through turbo doctorate school on all this due to me being able to recover lol. Those vitamins are found Veggies and fruits im sure im missing allot lol.. and in meats and eggs and nuts, and polyphenols in green tea-certain erbs, dark berries exotic berries and even in pomegranate. Im sure there are more. Just for those of u that have to go shopping for ur brain and strength so carefully allmost all forms of vitamin b are helpfull to energy as well as protein. And those berries give u power energy and brings up ur immune system and balances ur metabolic system. Carbs that go to fat because most foods carbs are from sugar and saturated fat contact.. ur body cant break them down so ur body stores them in fat cells so even when working out if ur lucky and draining lots of water too they will turn to muscle or leave u parched. Things like that comes from starches, wheat, grain, bread noodles, rice, corn, potatoes.Protein and vitamins and some minerals allthough some of us and im one have to be carefull how much magnesium i have even tho others dont so be carefull. Those are things all of us with epilepsy among other conditions deserve to know. I personally will be drilling my new docs and taking notes and asking for a nutritionist and dietician to guide me allong the way. As exhausted as ive been i bet sllot has to do with what im not eating or am and what i should instead of others. Things like oils and greases can block your arteries or blood flow and inhibit your medication working at fast response allong with left over unusable carbs. Ok so enough essay but good way to make your docs raise their eyebrows in shock and get us more help too. ;-)

edited, originally posted almost 3 years ago
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