Darryl, My personal opinion is that if we avoided everything that’s a potential trigger, we will be very sheltered. You have to get to know your illness not Shiela or bobs illness (hypothetical names). It’s a bit like saying everyone with epilepsy should avoid strobes although we all know that only affects a percentage of us. Although we learn the hard way, we have to know our own triggers as it helps us get a better understanding of how epilepsy effects us personally so we can carry on living meaningful lives around the epilepsy x

Darryl, for me my main triggers are lack of sleep and stress. I can drink coffee on any normal day. But it is possible that coffee combined with a stressful day or a lack of sleep day will trigger more seizures.

Yeah most people realize chocolate was a medicine before it was the tasty treat we now have. It was used a pain reliever and a basic cure all.

Hmmm... the risk of stroke is increased but doesn’t directly cause a stroke unless you’re knocking back 20 coffees at once.
Depending on the brand of coffee, there tends to not be a lot of caffeine in coffee anyway. Honestly Darryl hun, it’s good to be curious but overthinking isn’t great, it can take your mind into wonderful places. I overthink when low so I’m not just talking as a mental health professional but also from experience.

Everyone does what’s right for them. As we can see, coffee for these individuals doesn’t trigger a stroke or seizures- it may not be great for you personally but we’re all individuals.
Worry less, live more- that’s my motto :)

@A MyEpilepsyTeam Member here is a bit of my story that I started on. I use to drink a lot of coffee with sugar in it but the very first thing that took place is I stopped using sugar. How I stopped using the sugar? I went cold turkey, yeah cold turkey. Was not easy but I forced my taste buds into it because I knew if I didn't do something with removal of the sugar there was going to be trouble.

A help of removing the sugar was using milk in the black coffee. Oh, and since I don't always go for just plain black coffee I got into the flavored so it was something more exciting in my life LOL! I actually discovered southern pecan that is totally outstanding from a company on Amazon at a reasonable price. If I didn't feel like purchasing flavored coffee I would make my own using pumpkin pie spice then placing it into the grounds before brewing.

The only thing I did with the coffee after brewed is add a small amount of milk so it was blonde. Have been drinking coffee like this since 2000 and what's more, I use to drink 4 cups a day, they have dropped to 2 now sometimes I will only have 1 cup and that will be it. I've actually been lowering the amount of coffee had just by getting a good amount of sleep each night. There are some mornings when I need to meet someone online for a meeting and totally forget to make the morning coffee or I have made coffee and forget my coffee cup. LOL!

There have also been times I have wanted to drink a very well known herbal tea instead. I discovered from my doctor that is just fine to have in the morning and will be easy on the system.

Sorry the above is so long but hope the above helps.
-Sue

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