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A MyEpilepsyTeam Member asked a question 💭
Newcastle upon Tyne, UK

I noticed that a lot of my epilepsy friends around the world, especially in the US, wake up to a strong coffee. Knowing this is a key trigger for seizures, why do you still drink it?

July 19, 2019
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A MyEpilepsyTeam Member

Darryl, My personal opinion is that if we avoided everything that’s a potential trigger, we will be very sheltered. You have to get to know your illness not Shiela or bobs illness (hypothetical names). It’s a bit like saying everyone with epilepsy should avoid strobes although we all know that only affects a percentage of us. Although we learn the hard way, we have to know our own triggers as it helps us get a better understanding of how epilepsy effects us personally so we can carry on living meaningful lives around the epilepsy x

July 20, 2019 (edited)
A MyEpilepsyTeam Member

Darryl, for me my main triggers are lack of sleep and stress. I can drink coffee on any normal day. But it is possible that coffee combined with a stressful day or a lack of sleep day will trigger more seizures.

July 20, 2019 (edited)
A MyEpilepsyTeam Member

Yeah most people realize chocolate was a medicine before it was the tasty treat we now have. It was used a pain reliever and a basic cure all.

July 21, 2019
A MyEpilepsyTeam Member

Hmmm... the risk of stroke is increased but doesn’t directly cause a stroke unless you’re knocking back 20 coffees at once.
Depending on the brand of coffee, there tends to not be a lot of caffeine in coffee anyway. Honestly Darryl hun, it’s good to be curious but overthinking isn’t great, it can take your mind into wonderful places. I overthink when low so I’m not just talking as a mental health professional but also from experience.

Everyone does what’s right for them. As we can see, coffee for these individuals doesn’t trigger a stroke or seizures- it may not be great for you personally but we’re all individuals.
Worry less, live more- that’s my motto :)

July 21, 2019
A MyEpilepsyTeam Member

Coffee may not be a trigger for a seizure for everyone who has epilepsy.

December 31, 2023

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