I take a walk. Put my earphones in and listen to music while i take a walk by myself. Sometimes we need to learn how to be at peace and have fun by ourselves so everything other people say and do doesn't affect us that much.

Living with it my whole life i assume im no different to anyone without this condition. The thing most for me is a change of medication that effects my emotions and mood .I feel im no different to amyone and if i have something to say i generally say it . Unfortunately if i let my emotions get the better of me it des maje me have seizures of some kind but ive been on courses to control my emotions. Some helpful some not :( Keep it purple ✊💜

I see a private therapist. I used to bottle it up or think I was coping but I started sinking lower and lower. Find someone you can trust to offload to. It doesn’t have to be a therapist, I only do because I sink rapidly (to be honest). Find healthy coping mechanisms too. I could list many but you need to find what works for you :)

@A MyEpilepsyTeam Member I think Quezzare has covered the good advice you need. All I need to add is that you should never question: "I don't know if this is the area to post this..."
This is exactly the place anything related to life with seizures. This is where you can get advice from experience from others who know EXACTLY what you are experiencing for anything you can think of related to life with seizures.
NOTE: Not all of us can relate to every subject, but I can guarantee that there is at least one other person on here who can. I have never found a question that I have asked that no one has experienced here.

Mentioned Users

A MyEpile...

@A MyEpilepsyTeam Member I understand how you feel. In my case, it is not as often about frequently repeating myself (though I do that a lot too) as having extreme absentmindedness and completely unreliable memory recall at this stage of my epilepsy (because my stress level is so much higher now--than pre-2014 lay off--it makes the side effects of meds and epilepsy so much worse). Thus, I am frequently trying to give others in conversations hints to have them name the person, item, etc. that I am talking about but cannot recall the name. I haven't had any case of this where I have forgotten a siblings name, but I have had cases where I have forgotten (cannot recall) the names of nieces and nephews, friends and anyone else). It gets to the point that I try to shy away from conversations so that I do not embarrass (frustrate) myself in this way.

And, as to the extreme absentmindedness, if I get interrupted in doing the task by anything before I can do it and unless someone else reminds me about what I was doing, then it can be hours or even days before I recall that I had wanted to do this.

In fact, it was just a few minutes ago that I had recalled that my sister had texted me late this morning to call our Mom's physical therapist to see if she still wants her going to the appointment that is set for tomorrow (long before she went in to see the specialist about the pain in her hip) or after wait until after she gets the cortisone shot next week. I went to ask my Mom for the phone # after I received the text, and my mom shifted the subject to something else before giving me the number, and I never remembered I was supposed to make that call again until a few moments ago.

Mentioned Users

A MyEpile...