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Can Someone Please Explain What An Aura Is? What’s It Feel Like?
A MyEpilepsyTeam Member asked a question 💭
posted July 11, 2019
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A MyEpilepsyTeam Member

An aura for me is a feeling, an experience that I've had before. For me an aura is like a 2 minute warning that I always experience before I have a seizure. 95% of the time the feeling is dead on and I will have a seizure 2 minutes from the time the aura has arrived.

posted July 13, 2019
A MyEpilepsyTeam Member

@A MyEpilepsyTeam Member The problem for me (since most of my seizures are complex partial seizures, thus auras are actually simple partial seizures) is that many times I have the auras without any seizures and other times I have complex partial seizures and even full seizures without auras. And then there is the fact that the auras that I have had over the years have been a whole variety (similar to the form of the complex partial seizures being different based about what part of the brain has short-circuited at that time). And, of course, as you can see from the list of the various types of auras, there are some auras that are of the form (lightheadedness, numbness, headache, nausea, etc.) of side effects from medicines or symptoms associated with other things like low glucose levels. Thus, auras can be more of an annoyance than help in signaling if a complex seizure or full seizure is on the way.

posted July 12, 2019
A MyEpilepsyTeam Member

I don’t have auras but I have a best friend who has Epilepsy, gets auras. He told me that his auras , he experiences, sounds like electric guitar 🎸 playing

posted July 12, 2019
A MyEpilepsyTeam Member

There are actually many types of auras that you can have before a seizure and some of us do not even have the same type before every seizure and other times do not have one at all. Below is the explanation from WEB MD

What Does It Feel Like?
Sometimes it's hard to describe how an aura feels. Other times an aura can be physical, emotional, or sensory changes. Most people experience the same thing each time an aura happens.

Auras can be different for everyone.

They might include changes to your thoughts, senses, or awareness like:

Flashing or flickering lights, blurry vision, dark spots, partial vision loss, or seeing things that aren’t there
A feeling of deja vu, panic, or detachment
Hearing voices or buzzing, ringing, or drumming sounds
Unusual, typically unpleasant smells
Sudden acidic, bitter, salty, sweet, or metallic tastes
A sudden strong emotion like joy, sadness, fear, or anger
You could also have physical signs like:

Nausea or other unpleasant stomach feelings
Numbness or tingling

posted July 12, 2019
A MyEpilepsyTeam Member

An Aura Is The Body's Natural Warning Sign If You Will That You Are GOING TO Have A Seizure. I Can't Really Tell You What It Feels Like I Can Only Describe To You An Aura For Me, I Say This Because An Aura Is A VERY Personal Experience. You Either Have Auras Or You Don't I Am Fortunate Enough To Have An Aura 90 Percent Or MORE Of The Time VERY Rarely Will I Have A Seizure Without Having An Aura First BUT It Does Happen Every Now And Then

posted July 24, 2019

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