Auras: Who All Gets Auras At Least Sometimes Before A Seizure And What Can You Remember Some Of Your Auras To Be? | MyEpilepsyTeam

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Auras: Who All Gets Auras At Least Sometimes Before A Seizure And What Can You Remember Some Of Your Auras To Be?
A MyEpilepsyTeam Member asked a question 💭

What do you feel like? What do you smell? What do you see?

posted June 21, 2019
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A MyEpilepsyTeam Member

The inside of my right hand starts to feel “jumpy”. Like how your feet feel when they have gone to sleep and are waking up. Not the pins n needles part. Just the internal jumpy part. I am likely to have pain in the back of my head too (my CM is in my pons)

posted June 21, 2019
A MyEpilepsyTeam Member

I see sparkly little lights floating around. I call them my butterflies. Then I start to feel tingly in my hands.

posted July 9, 2019
A MyEpilepsyTeam Member

they start in what is called Hypothalamic Hamartoma.

posted June 25, 2019
A MyEpilepsyTeam Member

I was born with epilepsy and always have auras.
right now, my auras are every 10 minutes.
feel butterflies in stomach and very good mood as if you're going
down a rollercoaster.
after 3 surgeries and 40 years of epilepsy, they found where the seizures start.

posted June 25, 2019
A MyEpilepsyTeam Member

When I first started having seizures I had no warning signs and that went on tell age 10 all the way until the age of 29 then I had 2 brain surgery once I started backing off my medication I started having problems again but when I would go into a minor episode someone around me would just call my name and I would come right out of it and I could remember the whole thing from when I went into it until when they called my name and everything would be fine I use to have every kind of seizure in the world until my second brain surgery and I believe they fixed it for good

posted June 24, 2019

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