I might be getting a lesionectomy sometime in the future, I have left temporal lobe focal seizures. If any of you have had the surgery what are the tests like before getting the surgery as well as some of the symptoms after? I've been asking my neurologist a lot of questions but I also wanted some information from people who actually have had the surgery.
Your welcome @A MyEpilepsyTeam Member .
I do want to alert you . Doing this surgery won’t guarantee, that you will be seizure free. I also can’t say, that this surgery didnt make some seizure free. There are some people who are seizure free from this treatment.
When I had my brain surgery it did make me seizure free, but it reduced the frequency of my seizures , from severe to mild and moderate .
Don’t keep your hopes up too high . It good to hope , but keep it at a level where it won’t bring you down or feel depressed.
I do hope and pray that this treatment helps you in some way or another .
Thank you! I'm a little nervous but I feel like surgery is the last stepping stone I need to be seizure free and I'm pretty much down to try anything now.
Before my brain surgery I had to do a few different tests before that date.
I started with a 4hr. EEG , the Neuro Psych Test, MRI, and the WADA Test. Then the day of checking into the hospital, the had one more test done. The GRID test .They cut open the side of my skull where my seizures were active and placed a pad of electrodes directly over that area of the brain then staple the skull piece back into place. Then they got the EEG electrodes and the GRID Test hooked up and connected to the EEG reader. The GRD will help map out the exact areas my seizures are active .
After they have my brain mapped out , it time for the surgery.
Hi @A MyEpilepsyTeam Member . My Grid Test/EEG was a Video EEG . After the surgery, the side that was worked felt like a sponge 🧽. A liquid like substance in the brain 🧠 fills in that area of the brain . It all hardens in time. That part of the brain may also become sensitive to touch compared to other parts of the brain.
I got put on a pain killer and was told to rest and had a weight restriction , when carrying stuff . It takes 6-8 week to heal.
i have left complex partials (focal onset impaired awareness) seizures and had a hemispherectomy (left side of the brain is disconnected and a little bit of the left brain is removed). before the surgery i had seizures almost every hour. now its an aura every day or every other day. well now its seizure free with cbd oil. before the surgery i had no life but after i had options. the problems after surgery is my right side is less than the left. my right arm is numb and my hand is doing nothing. my right leg need to be in a permanent brace and i walk funny. finally i kinda have a yoda speech (middle and end sentence then beginning sentence) and i cant type good.