Have You Had So Many Seizures And Been In And Out The Hospital To Be Told The Same Thing? | MyEpilepsyTeam

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Have You Had So Many Seizures And Been In And Out The Hospital To Be Told The Same Thing?
A MyEpilepsyTeam Member asked a question 💭

Im constantly catching seizures everyday or every other day that I wind up in and out the hospital. The doctors keep telling me they pseudo seizures that I don't have any type of Epileptic seizures which I feel it bull crap excuse my language. I've done fell so many times, I don't know where I'm at who I am or who is any one or I don't want and one touching me are those pseudo seizures can you honestly stop catching Epileptic seizures?

posted March 30, 2019
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A MyEpilepsyTeam Member

I feel your pain! I have one doctor that is a specialist in Epilepsy. She diagnosed me with frontal lobe seizures and was able to see them on my EEG but no one else can. I am finally got the seizure under control with meds and cbd oil. But i was in the hospital for a colonoscopy the other day, i woke up from anesthesia having a seizure, the nurse was screaming and holding my head straight. I opened my eyes ans She said what are you doing. I said i dont know having a seizure, she said no people that have seizures cant say that stop the bullshit.

Frontal lobe epilepsy is so frusterating. Everyone says its fake. I even had a doctor in the ER make fun of me.

Keep your chin up! Even if you are having pseduo seizures they are happening for a reason!

posted April 1, 2019
A MyEpilepsyTeam Member

Yes for 20 years before i started seeing my consultant 10 years a go he found out i had been put on the wrong medication which made me worse but now all ok i just have to be careful with what i do and it will never stop me.
I still from my wheelchair.
Weld, cook, build ponds, rebuild vintage vehicles, and more.
Never give up do what ever you want to never put it off because life is to short.

posted March 30, 2019
A MyEpilepsyTeam Member

Unless your a young child who has seizures, can possibly grow out of it ( a small percentage ) . You on the other hand were diagnosed asan adult . Once your diagnosed with Epilepsy you’ll have the rest of your life.

posted April 3, 2019
A MyEpilepsyTeam Member

Randy is right, go to a new doctor, my first one thought I was faking it also, that was 35 years ago.

posted March 31, 2019
A MyEpilepsyTeam Member

I won’t say it’s impossible, but I will say ,it’s very difficult to act out a fake seizure.

With everything your experiencing, before and after the seizure , is a major clue that the whole incident was real.

What you need to do is tell them that if they think that your faking this , that the need to contact your neurologist. If you done have one you may want to look for one.

posted March 30, 2019

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