My seizures are mostly controlled, but I still have auras. Mine might last for hours of feeling clumsy, kinda slow, a heavy or twitchy left hand at times, and anxiety, maybe claustrophobia. Kind of upset I still have them since it's been almost a year since the RNS was placed. I'd really like to know more about different peoples auras
I have these really odd auras, sometimes they generalize into convulsions but they always start out the same, I get a weird feeling behind my eyes, I almost feel like something bad is about to happen, I get a type of butterflies in my stomach, if the butterflies were sinister. Sometimes I snap out of it, sometimes I wake up hours later on the floor, or the couch if I'm lucky enough to be around my wife at the time
Thank you for all your responses! It's amazing how diverse aura feelings are. I can relate to many of these but some are scary! @A MyEpilepsyTeam Member Wow! That is something else to "sleepwalk" per se for an aura, not fun!
What I don't like is sometimes my auras are so distracting/ I'm so confused during them that I have to leave work early. Then I get home and nothing happens. But, @A MyEpilepsyTeam Member, you have the right attitude! It's part of our lives and we have to accept it as that. Thanks!
Hi ladies and gents, new to the app. My auras, i kinda wiggle my jaw back and forth and i trip over EVERYTHING. Im no dr but since i told my dr about it hes adjusted my meds and they have gone away. I know for some people its not that simple. Maybe, or you might have already give the doc a call and see if he/can do a adjustment. Auras SUCK.
Yes. Still have them. They haven't changed.
Vns a couple years now... Really bad,knee buckling nausea. But only last a minute. Followed by the "taste of a penny."
Sometimes a random smell. So out of place that I ask others,"you smell that?" If I take just me, I'm in trouble.
Time to swipe the magnet.
Before my VNS surgery I was having about 5 seizures in a week. VNS surgery has reduced my seizures greatly.