I’m 18 (diagnosed at 14) and this school year my epilepsy has gotten worse and I just feel really isolated with my epilepsy. Last year I mainly had absences/ focal onset impaired awareness seizures and only a few tonic-clonic seizures which sucked but I endured. But now this school year, since our mock exams, my epilepsy has gotten much worse and I’m experiencing more of all those types of seizures (especially the tonic-clonic seizures at home). I don’t know anyone with epilepsy and despite that all my family and friends are really supportive and try to be understanding I just feel like they can’t truly understand how it is. There’s a part of me that worries about getting into uni - especially since my grades are really high. Also, I know I shouldn’t say this because everyone has their own personal struggles and stories but I can’t help think it’s all a bit unfair. This school year is so stressful and I feel so alone. Please someone reply. Please.

Is Anyone Else Trying To Get Through A-levels (or Last School Year Before University)?

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Is Anyone Else Trying To Get Through A-levels (or Last School Year Before University)?

A MyEpilepsyTeam Member asked a question 💭

I’m 18 (diagnosed at 14) and this school year my epilepsy has gotten worse and I just feel really isolated with my epilepsy. Last year I mainly had absences/ focal onset impaired awareness seizures and only a few tonic-clonic seizures which sucked but I endured. But now this school year, since our mock exams, my epilepsy has gotten much worse and I’m experiencing more of all those types of seizures (especially the tonic-clonic seizures at home). I don’t know anyone with epilepsy and despite that… read more

posted March 16, 2019

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thank you for taking the time to write this - it has made me feel so happy right now (and also more intelligent).

posted March 21, 2019

You are definitely not alone. We all understand that feeling.

posted March 16, 2019

Thank you Sue

posted March 23, 2019

I’m here if you need

posted March 22, 2019

I have parital seizures in school and they have gotten worse and i have a staff with me all the time

posted March 16, 2019

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