@A MyEpilepsyTeam Member i have a lot of families and some have that. dad (and others) are caring and loving but is doing it wrong way or in the wrong time. when i have an aura or something pre seizure, dad tries to be 'funny' or 'goofy'. dads methods sometimes works. thats because those jokes are so stupid or funny that my mind gets out of the seizure just to say 'your hilarious' or 'really!?'.

Mentioned Users

A MyEpile...

Yes. I just asked a similar question! I get so furious and then depressed.

I’m a carer for my husband. Hardest part for e is when he starrs having seizures again and can’t drive. It’s very hard on both of us and he gets depressed and angry. I understand it imust be horrible but I still struggle trying to deal with it and help with transportation. Pretty exhausting ad depressing.

I have a great support team now but I'm 43 and having seizures since birth, didn't always have support, swept under carpet ( ignored ) even hated by my older sister because I had it. Attention thing. I've been accused of being possessed even. It's hard for ppl to understand what they don't see. If your wife is willing to try and understand ,she needs to inform herself. I know what your talking about and have suffered depression multiple times. Patience is the best thing for epilepsy but not everyone has patience. GOD bless you all.

@A MyEpilepsyTeam Member I agree with everyone and the fact we all experience the same thing means you're not alone. My wife says it's a sign she really cares and has seen me close to death and doesn't want to lose me. When I have seizures and auras she panics. You have to have honest conversations and perhaps introduce her to this forum so she can talk to other carers and sufferers. That way she will not feel she can't cope and is not alone. Take care.

Mentioned Users

A MyEpile...