How Many Of You That Have Epilepsy Cannot Work, Been Laid Off Due To Your Condition, Limited In Your Job As A Result Of Drugs Or Condition? | MyEpilepsyTea

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How Many Of You That Have Epilepsy Cannot Work, Been Laid Off Due To Your Condition, Limited In Your Job As A Result Of Drugs Or Condition?
A MyEpilepsyTeam Member asked a question 💭

I am researching the effects of epilepsy in the workplace and am wondering how it applies to everyone with the disability. I know some are receiving SSI disability and also want to know for those that are receiving, would you go back to the 'regular' work environment, use as a supplement or not at all. Also how many people would work for lesser pay if you were laid off or released from your prior job
What type of jobs do you have or had
Was your employer/co-workers sympathetic to your… read more

posted March 5, 2019 (edited)
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A MyEpilepsyTeam Member

To all w/ epilepsy it can be different as far as that is concerned. There has been many times I would of liked too, but even working a little too much at my place can provoke me to have 1. I have to make sure I work at a decent time, not too fast or I will be out if it the rest of the day due to feeling tired from having 1.
Plus I don't have them as I did in the past, as bad. So if I can keep from having 1, I'd like too.

posted March 5, 2019
A MyEpilepsyTeam Member

I've been employed though my daughter's school district the past 7 yrs part time. They are aware of my condition. But because I'm feeling better I'm considering a full time position at Dempsey Uniform. Actually I'd love to get in the USPS. I'm checking into the test which is difficult. But omg, a state job would be supreme, excellent benefits. I know it will cost me my Social Security. Health benefits will remain in effect for up to two yrs. Just used as secondary.

posted March 5, 2019
A MyEpilepsyTeam Member

It is a difficult process , I had a job I really loved working ten hour days. Though I was friends with the owner, once I was diagnosed with epilepsy and had a few seizures on my way to work she decided it was best to lay me off so I could " focus on my health". She told me my job would be there once my seizures were under control but tbh we both knew my position had to be filled in my absence. I was a hard worker but after a seizure I was physically unable to perform my duties, it only happened once where I had tgt the hospital but it was enough. Now I'm a HHA and it's less money but I make my own schedule so its less stressful. We have to be reasonable and understanding to ourselves though it can be frustrating. Love yourself and you'll find a way, even if it's not the first path you travel.

posted November 24, 2019
A MyEpilepsyTeam Member

My husband did meat cutting and sales before his epilepsy but couldn’t continue. Was fired from several jobs due to reasons associated with medication side effects and health. Always had been a stellar employee so that was rough. Ultimately took a lower paying job that has been a wonderful and safe environment. Really hard on our finances but at least he is happy and appreciated. So tough though, all cause of the disease he has no real control of that randomly developed at 45. But gotta keep on keeping on!

posted March 7, 2019
A MyEpilepsyTeam Member

I have been cause of my Gran mal seizures and the thing is I only have them once every 2 to 3 months or if I get really stressed out but over all no place wants to hire me. And it sux cause I am a very hard deacated worker.

posted March 6, 2019

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