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A MyEpilepsyTeam Member asked a question 💭
Altamonte Springs, FL

My surgeon wants to give me a VNS. Has anyone had bad side effects or a bad recovery? If so what should I possibly look for? What has changed and has it helped your seizures

December 26, 2018
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A MyEpilepsyTeam Member

Hi Angela. I've had a VNS for 4 years. Surgery and recovery went well. I had some side effects for the first few months. After my body got use to the device, the side effects went away. The VNS helped reduce the amount of seizures I have. As soon as I feel a seizure starting, I swipe the magnet over the device and the seizure stops. The side effects that you'll feel will be a horse voice, itchy throat and a cough due to the location of the nerve. I only feel those side effects now when I swipe the magnet on the VNS. Getting the VNS was the best decision I have made. Good luck!

December 26, 2018
A MyEpilepsyTeam Member

Mine has helped me out seizure wise great. One thing that has me wondering is my voice. I'm hoarse more than I expected. I've rather have the Voice problems than the seizures. Living in Tennessee now and back to Fl for a month I feel safer out in public. We traveled all the way to the pacific this fall and no seizure problems. For me I'd rather explain the Voice problems than a seizure. Good luck on your adventure with the VNS.

December 27, 2018
A MyEpilepsyTeam Member

Less seizures with the Vns. I go months now.

December 29, 2018
A MyEpilepsyTeam Member

Ask your doctor about the RNS device. Google it.
They say it works better than the VNS

December 28, 2018
A MyEpilepsyTeam Member

My nuro has sent me to talk to someone about this in fact I go in a few hours. I am wondering about my first appointment if i am supposed to be sleep deprived or not I lost my referral paperwork

December 26, 2018

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