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Long Periods Of Seizure Free Time
A MyEpilepsyTeam Member asked a question 💭

For those who have been seizure free for a long time (talking years) what do you put it down to?

posted November 27, 2018
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A MyEpilepsyTeam Member

For me, it's been having a right temporal lobectomy.

posted November 30, 2018
A MyEpilepsyTeam Member

@A MyEpilepsyTeam Member - big congrats on hitting 3 yrs of seizure freedom! I'm at 2 yrs, 2 months & am very happy too.

Glad you found the right drugs to help in your fight. Everyone is a little different though. I tried Lamotrigine as my 3rd drug. My neurologist wasn't certain it was a possible solution for me so he started me slowly in low dosage (50 mg/dy). After 6 wks, when I got up to 150 mg/dy I had to quit it immediately b/c of a bad reaction.

Not many people are allergic to Lamotrigine in North America. Only 0.3 of 1 percent (3 people out of 1,000 with Epilepsy) have to avoid Lamotrigine. But it's fantastic that it works for you!

Keep up the great work of beating Epilepsy. I send you my best wishes.

posted December 8, 2018
A MyEpilepsyTeam Member

taking my pills exactly 24 hours after my last dose. right down to the minute by using an alarm. reducing my stress by writing everything down in a notebook because my short term memory is so awful and it gets very annoying.

posted November 27, 2018
A MyEpilepsyTeam Member

@A MyEpilepsyTeam Member - I agree with mtnbkr (btw - this is a great writer's name!). Yes - once the proper meds have been ID'd, take them religiously as instructed. And also yes, reduce stress (simple walking or other exercises).

Keep a positive thought toward beating Epilepsy.

posted November 27, 2018
A MyEpilepsyTeam Member

Religiously taking meds and reduced stress.

posted November 27, 2018

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