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A MyEpilepsyTeam Member asked a question 💭

As most of you know I was just recently diagnose with epilepsy at age 46. And it has been a hard pill to swallow. I just noticed it is epilepsy awareness month. And was wondering if anyone knows or can help me start a epilepsy group in my community. I know for me when first found out I realized that mere is not a lot of information or local awareness on this. And would love to help people with support and knowledge about it. Want to be able to be there for people that are confused and scared… read more

posted November 8, 2018
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A MyEpilepsyTeam Member

I am so sorry that you found out. It is not something that you want to hear for sure. I am 45 but I have had a version of it all my life. It has gotten worse over the years. Most people who have it from childhood on get better. I am contrary though in most things- this included. LOL. I wish you luck in finding a support group. Most of what I do is online because I live in a rural community in Georgia. I would be happy to talk to you from time to time.

posted November 12, 2018
A MyEpilepsyTeam Member

Here in CALIFORNIA, there's the EPLISEY FOUNDATION, that U can possibly contact.

posted November 12, 2018
A MyEpilepsyTeam Member

It started for me at 47. I was surprised too.!

posted November 10, 2018

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