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Real members of MyEpilepsyTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Adding Onfi To My Regimen? How To Handle Tiredness And Work

A MyEpilepsyTeam Member asked a question 💭
Providence, RI

I’m on 1800 mg of Trileptal and 200mg of Zonegran and now we might be adding Onfi to my daily intake 😒

I recently started a new job in febuary which is like 10x more physically demanding than my previous job. I started having seizures and rare symptoms a little over 2 years ago and now working this job I think I underestimated how exhausted the illness makes me or the medication makes me
I have about 2-5 seizures a month that happen only during my menstueral cycle, so the onfi would be taken… read more

August 7, 2018
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A MyEpilepsyTeam Member

Oh wow! Thanks for your answer. I hope not my insurance covers more of it. I can’t afford that. I’ll only be taking it 10 day out of the month.

August 15, 2018
A MyEpilepsyTeam Member

It took 13 years to solve my seizures. They tried every medication. They put in a VNS and helped some. I still take 1500mg of Keppra twice a day but when they tried Onfi it was the miracle drug. I haven’t had a seizure for over three years. It really helps people with partial complex in left temporal lobe . But it’s expensive. I pay $740 a month copay until May.

August 14, 2018
A MyEpilepsyTeam Member

How do you handle that? Do you have accommodations?

August 10, 2018
A MyEpilepsyTeam Member

I’m not on Onfi but my job is very demanding and takes alot out of me. It does cause me to have more siezures.

August 9, 2018

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