Do you think changing the name "epilepsy" could result in lessening the stigma IF the right alternative name/phrase is chosen? Yes or no? If so, do you have ideas for what good names would be? Should the various classifications of epilepsy be named according to shared characteristics -- e.g., local/generalized; conscious/unconscious -- allowing others to understand that there are so many different kinds?
Epilepsy by any other name is still Epilepsy. You still have to understand the meaning of the word. It is the meaning that people are afraid of and don't want to talk about. Education is the only way to stop the stigma. EPILEPSY AWARENESS!!!!!
I think that removing Epilepsy and replacing it with, for example, Seizure Disorder would only expand the explanation about how the individual develop seizures (head injury, drug overdose, or simply seizure disorders from birth, adolescence or other time in life. It is much easier to group everyone with seizure disorder under Epilepsy because regardless how you developed the seizure disorder, we all have it. And we can continue to work together to educate others about the truths about Epilepsy.
If the name Epilepsy was changed, the symptoms would still be there. People would soon learn what the new name or names are. People need to be thought what Epilepsy is and isn't.
there is already have 2 words. there is 'epilepsy' and there is 'seizures'. the seizures didnt help. it is not the epilepsy thing that people do not understand, it is process of telling um about it that worry people.
I do not feel a name change for Epilepsy is essential. It is a medical condition. Not a crime and protected by the Humam Rights Charter. But irregardless as to the name it is how we deal with our symptoms and lead our own lives that matters. We will still have our symptoms to deal with and our energy can be better used in dealing with them, instead of making friends with the bigots. And jerks can even get the message. Years ago on my way home from a get together I was passing a bar with a bunch of guys standing in front of the entrance. As I expected they came onto me , inviting me to go into the bar. The beer is cheap, they claimed. I looked at the bar door sensing malicious intent. Then I told them matter of factly that I had been epileptic from birth and concequently never touched alcohol, because it did not mix with my medications. So a cheap beer was not going to be enough to make me want to go into that bar. Then I waited for their reply. They realised they chose the wrong person to try to seduce and I was back on.my way to catch the bus to go home a few seconds later. Their collective ego was damaged and I was not put down for being epileptic. Instead they had to deal with this thing called Epilepsy. They got the.message because they knew I did not care what they thought of me and my Epilepsy.