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Vempat Vs Dyphagia
A MyEpilepsyTeam Member asked a question 💭

I'm on Vempat for the last 3 months which really controlled my seizures, away from mild twitches in my left arm and once per month partial complex which is paradise for my previse situation, recently I'm suffering from dysphagia and its progressing with aspiration of stomach fluid to my lungs witch is giving me chest infection from time to time,
I googled and their is a report from FDA saying their 2% population suffering from dysphagia, has any one suffered my situation, any advice?

posted April 9, 2018
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A MyEpilepsyTeam Member

I have a VNS unit, in fact I'm on my 2nd unit. My 2nd unit is much better than my first. Instead of replacing the battery, they did an upgrade on the entire unit. Yeah!!! The neurologist I was seeing was absolutely inadequate, but the neurosurgeon had his act together and had the sense to request an entirely new unit. Speaking of Vimpat, it's poison. Not to brag, but I am well educated, my mother was an English teacher, etc, and Vimpat turned me into an idiot. I couldn't speak properly. My consonants and vowels were reversed within individual words and within sentences, if that makes any sense. It drove me crazy. I couldn't control what and how I was speaking. Again, for someone who wrote for a living, I was going crazy not being able to control what was coming out of my mouth. The side effects of the VNS are vocal stimulation, losing my high range in singing, over stimulation if the VNS is set too high and the inability to have an MRI done.

posted April 10, 2018
A MyEpilepsyTeam Member

I thought i was the only one. I tried Vimpat too, it did not control my seizures, but it did give me alot of side effects.

posted April 10, 2018
A MyEpilepsyTeam Member

I'm not in Texas anymore and am thoroughly miserable. I'm pretty much alone and overly emotional due to menopause. My seizure types are partial complex and catamenial epilepsy with a heavy side effect of depression thrown in. I struggle to stay positive, and for the most part succeed.

posted April 27, 2018
A MyEpilepsyTeam Member

We have alot in common! I just got upgraded to the Aspire 106, got off keppra and Vimpat, and can't sing anymore which is ok. Wishing you seizure free days forever 😀❤

posted April 16, 2018
A MyEpilepsyTeam Member

if I may ask , what are you on now to control your seizures.
wish you a free seizure day.

posted April 10, 2018

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