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Real members of MyEpilepsyTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Auras

Auras

I have really rare symptoms associated with my epilepsy, which mostly makes me feel super alone, because I can always relate to others who have epilepsy. I was wondering if people could respond with what the feel before or after a spell, maybe I can relate to something. Or how you feel the next day. What kind of self care do you do?

A MyEpilepsyTeam Member said:

With Aura it doesn't have to happen directly before a stronger seizure it's the beginning of the electrodes overloading someone can have an aura and the stronger seizure can happen within minutes, hours or 24 hours beforehand. But I think anyone with epilepsy after any type of seizure be it a partial or grandmal seizure can sleep for hours after it when the neurons begin to slow down in our brains again😴

posted over 4 years ago
A MyEpilepsyTeam Member said:

Normally I end up with a headache and tiredness for the rest of the day after a grand mal seizure. When that happens I try to stay home and relax. Read a book or listen to soft music (not very loud though). The point is to not do much until the next day when I normally I feel back to normal. On the other hand, when I have absence seizures most of the time I feel normal afterward and can continue with my regular activities. I hope this helps you in any way.

posted over 4 years ago
A MyEpilepsyTeam Member said:

That is 'understandable.' A Dr.
told me when a person
has a seizure, it similar
to an electrical object
that gets an "overlode,"
& it's too much to hand
-le & that's why you may 'pass out,' & feel
so tired afterwards.

posted over 4 years ago
A MyEpilepsyTeam Member said:

I get deja vu before the seizure.... Then postictal i can taste blood and only blood for se eral hours after... Even if i eat or drink the food or drink tastes like blood ... Its nasty but I always know if i have one while sleeping.... Morning toothbrushing is like a vampires dream😯

posted over 4 years ago
A MyEpilepsyTeam Member said:

I also try to keep track
of the food i eat, because, "just like med
being chemical(s), so
is (food).
I use to take a certain
med 4 depression &
the Dr. told me to not
eat "grapefruit," because it works against the medicine.
That's 1 reason why
medicine affects each
of differently. We all
have different chemicals in our body
& so "what helps one
person," "won't help
someone else."

posted over 4 years ago
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