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Auras
A MyEpilepsyTeam Member asked a question 💭

I have really rare symptoms associated with my epilepsy, which mostly makes me feel super alone, because I can always relate to others who have epilepsy. I was wondering if people could respond with what the feel before or after a spell, maybe I can relate to something. Or how you feel the next day. What kind of self care do you do?

posted April 8, 2018
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A MyEpilepsyTeam Member

With Aura it doesn't have to happen directly before a stronger seizure it's the beginning of the electrodes overloading someone can have an aura and the stronger seizure can happen within minutes, hours or 24 hours beforehand. But I think anyone with epilepsy after any type of seizure be it a partial or grandmal seizure can sleep for hours after it when the neurons begin to slow down in our brains again😴

posted April 13, 2018
A MyEpilepsyTeam Member

Normally I end up with a headache and tiredness for the rest of the day after a grand mal seizure. When that happens I try to stay home and relax. Read a book or listen to soft music (not very loud though). The point is to not do much until the next day when I normally I feel back to normal. On the other hand, when I have absence seizures most of the time I feel normal afterward and can continue with my regular activities. I hope this helps you in any way.

posted April 9, 2018
A MyEpilepsyTeam Member

That is 'understandable.' A Dr.
told me when a person
has a seizure, it similar
to an electrical object
that gets an "overlode,"
& it's too much to hand
-le & that's why you may 'pass out,' & feel
so tired afterwards.

posted April 9, 2018
A MyEpilepsyTeam Member

I get deja vu before the seizure.... Then postictal i can taste blood and only blood for se eral hours after... Even if i eat or drink the food or drink tastes like blood ... Its nasty but I always know if i have one while sleeping.... Morning toothbrushing is like a vampires dream😯

posted April 18, 2018
A MyEpilepsyTeam Member

I also try to keep track
of the food i eat, because, "just like med
being chemical(s), so
is (food).
I use to take a certain
med 4 depression &
the Dr. told me to not
eat "grapefruit," because it works against the medicine.
That's 1 reason why
medicine affects each
of differently. We all
have different chemicals in our body
& so "what helps one
person," "won't help
someone else."

posted April 12, 2018

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