I've been taking a decent amount off from work for Epilepsy tests/surgeries and the $170 government check only does so much. So I'm just wondering what's the min. and what's the max?
(I'm not talking about exhaustion or pain...just going back to a semi-ordinary routine aka a normal 8 hour work day)
You will return to the Epilepsy Center four to six weeks after surgery, and every three months thereafter, to monitor how the RNS is working. It can take as long as a year to see the full effects of RNS, and the frequency of seizures appears to continue to decline over time.
I'm in Canada & I lived not far from the hospital that I had my surgery. I had a left temporal lobe surgery & was in CHEO for 13 days at the age of 17. I wasn't working before my surgery but it depends on how you recover from the surgery that here you may need to get insurance or E.I. to cover until you can go back. But E.I. only works usually for a year. I was out working about a month after the surgery cause I didn't like being home all day at the time.
Thanks, I think the Sentiva system is right for me. Ive had complex partials for 39 years now. I know theres no Magic Bullet, im just looking for a little relief , i hope this with my Lamictal will help. It has alot of new features. Besides Auto stim, it generates a log it knows what time, body postion when ur having them, duel settings, day-time, night-time programing. It also has future programming without a doctor's visit assuming the the tablet for downloading and programming they give u isn't running on Windows Vista. And if i cant deal with the side effects, i can always have it taken out. But it seems RNS would be ur next step. But I'm still weighing the pros vs the cons.
@A MyEpilepsyTeam Member - I have the VNS...unless you have generalized seizures...the VNS does jack. At the time I was diagnosed with that type...turned out I have Focal. Wasn't a fan. My voice changed and I was out of breath doing the simplest of things (walking up stairs, sprinting for the bus, doing simple work-outs with weights). Not only did I not get off my meds and stop having seizures...I increased medication. I've seen the Mayo doctors at PHX (my folks live in AZ). They seem like they know what they're doing. I hope it works out for you.
Im still working on my education into VNS surgery. I dont know much on RNS recovery time. Find out from NeuroSpace the makers of RNS, either on there website, or Facebook, about webinars or chat call lines for questions about RNS. Ie: recovery time, i do that with VNS. Im am so prepared from the info i have gotten on VNS with the new Sentiva system. They answer all my questions at Livanova the makers of VNS, i suggest u do the same with RNS, with that and surgery consultations ur covering all ur bases. Hope this helps. Christopher
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