Prolonged aura with seizure cluster

Prolonged aura with seizure cluster

Has anyone had a prolonged aura and you try to "fight off" your seizure because you know its coming? I was at the grocery stote today and i didnt want to fall down and make a big scene so i tried to calmly go to the register and kind of leaned on my boyfriend and seized in line because i couldnt fight it anymore.. it didnt last that long but i was still out of it until we went to the car and i had the rest of the seizure in the cluster.
Does anyone else try to fight the… read more

A MyEpilepsyTeam Member said:

I get Auras about five minutes before. If I get myself really cold, control my breathing and get to a dark place to lie down I can have them more safely. I also try to concentrate on one thought and not get stressed but once I have an aura, I know a seizure is coming. Fluorescent lights, heat and lack of sleep are my main triggers. Other types of light bother me too but sunglasses help in the car along with air conditioning.

posted 5 months ago
A MyEpilepsyTeam Member said:

When I have an aura, i try to will away the seizure that I know is coming! Its worked a couple of times. I like to go to a cold place, try to breathe regularly also and think im not going to have a seizure, im not going to do this! As i said sometimes it works

posted 5 months ago
A MyEpilepsyTeam Member said:

Ask your doctor for information on the Vegas Nerve Stimulater. Before I got the VNS, I had complex partial seizures. Now, I have auras, not seizures. When I feel the aura coming on, I take a magnet and swipe it across the part of my chest where the surgeon implanted the vns. The magnet turns on the VNS and therefore stops the seizure.

If I didn't catch the aura in time, I try to focus/listen to something. That helps me know how long the aura lasts. (My focus is normally audible. It is easier for me to focus on sounds.)

posted 11 months ago
A MyEpilepsyTeam Member said:

A suggestion as its worked for many people suffering from epilepsy in a bad way.
I told them individually to say psalm 23 as they feel it coming on.
I still remember saying only the first verse.
To this day they either phone me or whats app me saying a uncountable thanks, I just had to keep on replying thank your heavenly father not me.
Which they started doing..
To me it works maybe an odd one not but will keep on saying psalm 23.
He has the strenghth to stop anything, he is just waiting for you to ask him.
People give it a go for two weeks and ill guarantee a few of you are going to let me know that you said it and it worked.

posted about 1 year ago
A MyEpilepsyTeam Member said:

I thought I was the only one...😩😩

posted 6 months ago
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