Prolonged Aura With Seizure Cluster | MyEpilepsyTeam

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Prolonged Aura With Seizure Cluster
A MyEpilepsyTeam Member asked a question 💭

Has anyone had a prolonged aura and you try to "fight off" your seizure because you know its coming? I was at the grocery stote today and i didnt want to fall down and make a big scene so i tried to calmly go to the register and kind of leaned on my boyfriend and seized in line because i couldnt fight it anymore.. it didnt last that long but i was still out of it until we went to the car and i had the rest of the seizure in the cluster
Does anyone else try to fight the seizure thats coming?… read more

posted February 17, 2018
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A MyEpilepsyTeam Member

Yes I have tried to fight it off but my doctor told me I can't fight it off I don't have control of it, it has control of me the more you fight it the more it draines you.

posted July 15, 2021
A MyEpilepsyTeam Member

I get Auras about five minutes before. If I get myself really cold, control my breathing and get to a dark place to lie down I can have them more safely. I also try to concentrate on one thought and not get stressed but once I have an aura, I know a seizure is coming. Fluorescent lights, heat and lack of sleep are my main triggers. Other types of light bother me too but sunglasses help in the car along with air conditioning.

posted April 11, 2019
A MyEpilepsyTeam Member

Everytime I have a Grand or Petit Mal Seizure it's accompanied by an Aura.
However, I've experienced hundreds of individual aura episodes as far back as Elementary School. A strong, out of body feeling that I've been here, done this before. Followed by a feeling of forebearing and anxiety...
Initially, I wasn't even aware that Auras existed. I'd always referred to the experience as Deja Vu. I now try to productively use an Aura as my Stop, Place & Lay Warning...
1. Stop What I'm Doing Immediately!
2. Place my Phone Near me
3. Lay On the Bed, In the Middle, so I Won't Fall Off
(If Not Near a Bed, Sit In the Middle of the Floor)
**I'm a Full Figured Female, my family and EMT's have had to leave me in wierd positions till I came to or try to lift me when I'd fallen in the middle of doing a task or near potentially dangerous objects. Not everytime I have an Aura do I have a Grand Mal but those few seconds I have making my experience safer for everyone has made me feel that I am a little more in control...

posted June 21, 2021
A MyEpilepsyTeam Member

Way back before I had 2 gran mals, I had experienced weird sensations, several, each a different sense, and had zero idea they were medical issues! One was dancing lights in my vision and I knew nobody else saw but I thought I must be too tired. Very real looking to me and beautiful. Then I had at times smelled what seemed the worst smell ever and nobody else could smell and I really just thought my nose was better. Putrid horrible smells that made me feel fainr but I got over it. Then sometimes, I'd feel faint and slide to the floor but I thought I must have been too hot or that the conversation had made me queasy. Then the ones I did try to fight and did think I fought successfully were what I thought were dizzy spells but I had visualized a vortex and it was sulking me down and I felt that if I gave in, I would die and so I mentally fought my way to be alert and erase the vortex and yes I felt exhausted after all of those. But I was always running on empty, working too many hours and never knew any about epilepsy. Took me years to even realize these had been seizures of a smaller kind than the gran mals that ended up with me on one med after another until one worked without side effects and then months to get my thoughts back . So yes, I did try to fight what turns out to have been auras and they were not followed by seizures until a few years later.

posted May 15, 2021
A MyEpilepsyTeam Member

I do all the try to "fight" my seizures all the time. I have tonic-clonic seizures an whenever I feel one coming I do a breathing technique I learned called the butterfly (used for EMDR) to help calm me down. At the same time I repeat "I'm ok" until I feel better.

posted April 7, 2021

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