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How Has Epilepsy Affected Your Work?
A MyEpilepsyTeam Member asked a question 💭

I'm in the proces of applying for HCPC registration and I need to declare about having epilepsy and my relatively recent seizures - will this impact me getting my registration?
Occupational health have previously advised no lone-working, which would impact my work immensely! Anyone have similar experiences?

posted January 27, 2018
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A MyEpilepsyTeam Member

I am an electronics technician at a public university (Purdue University). I have been there since 2001. I told my boss at my hiring of my epilepsy and he had no problems with me.

I requested for a reasonable accommodation of having a service dog in 2016. I started the process with HR, but they threatened to fire me because having the dog would limit the types of jobs that I could do. HR stated that I had to secure another job, on or off campus within 2 weeks, or be fired

I had my neurologist write HR a letter stating that I could do the job. HR backed off after they received it.

I think they finally realized that if they did fire me, charges would have been pressed of them violating my rights under the ADA. I had started talking to an attorney regarding HR's actions.

It has been almost 3 years since all this started, but is still a sore subject for me.

posted February 3, 2019
A MyEpilepsyTeam Member

Octavia:
Unless you told SOCIAL SECURITY when you were diagnose with EPILEPSY
YOU may have a real problem getting DISABILITY.
MY parents never told Social Security when I was Diagnosed and now I
can't get it retoactivelly.

EPILEPSY is a DISABILITY, and we are disabled.
Now some of us may work & some have such bad seizures they can't.

posted October 9, 2020
A MyEpilepsyTeam Member

I had to quit wrk and file for disability

posted January 29, 2018
A MyEpilepsyTeam Member

I worked in a doctor's office for about 6 years and they didn't have a problem with me having epilepsy. They were actually understanding about it. That being said, I don't have convulsions, mine are complex partials. And at the time they were somewhat well controlled. Towards the end of that job they worsened and at my last job I was fired because of all the absences that I had because of the times I had called in sick because of the problems caused by my epilepsy. I never told my supervisors at my last job about my condition though.

posted January 28, 2018
A MyEpilepsyTeam Member

I've been a 911 operator for a few years. I was JUST diagnosed last year with epilepsy and now, my doctor says I can't do that specific job. I was also in the process of becoming a police officer and that;s out the window now. Thankfully they're trying to accommodate me at work but it just sucks.

posted March 8, 2021

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