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Would you attend a face to face epilepsy support group? I realize getting there may be a challenge if you don't drive. What if a ride was provided?
Hope any1 who IS interested, finds one nearby they can go too.
@A MyEpilepsyTeam Member - I am sorry to hear about how inadequate, inappropriate & useless your local official group is. Yes, there are better groups elsewhere & I wish these were closer to you. My local group, Epilepsy Association of Nova Scotia in Halifax, NS is great. Our monthly mtgs include medical & other folks who know a lot and listen well. It's great. In your area, is there anyway to seek suggestions from any medical experts for other options for you?
As you can tell from many responses you've received, a lot of people (like me) send our best to help you fight the fight. You are in my thoughts & others. Stay well my sister.
I joined this for support and it’s been wonderful. I think trying to start a face to face group inyour town is worth a try! I think we’d go if there was one in our town.
@A MyEpilepsyTeam Member - attending a face to face epilepsy support group depends on the calibre of the group. Yes, I regularly attend one in Halifax, Canada but only b/c it's organized well, has other people with epilepsy (which I like) & has some professionals from the medical community who can offer answers to questions raised. BUT, attending any mtg depends on how well it's organized.
My suggestion? Check it out, see how it goes & use this info to decide on future mtg participation.
Heck yel be glad to but must be around here in Mi
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