Just scare me to death. I have had several gran-maps and partial-complex. They don’t know exactly where in the brain they start. The capillaries in the back of the brain are too small to do surgery on. So with that said. What is your experience for the VNS or brain surgery. Good and bad experience.
I went with vns because it was the only option the seizures were coming from different parts of my brain and they thought if they removed any part of the brain it would just makecthe seizures jump. But i have had my vns since 2011 and reallh like it
I have had the depth electrode test in the past-that was the only way for me to find out if it was possible for my epilepsy to be completely eliminated. The test was long, & uncomfortable, but people that have epilepsy need to take risks to find the answers. That test also gave Dr.'s valuable information about where my seizure were coming from. After that test was over I also had the vns implanted. That has helped me also. Remember this/ask yourself these questions-will the possibility take this test be possible in the future & will the vns be available? Make Your decisions carefully-Good luck in the future!
I had a right temporal lobectomy in 1993. I have been seizure free, except for a couple of seizures during my pregnancy.
Surgery is very scary, but I put my faith in the Lord, and prayed a lot before, and after surgery. I had a lot of anxiety for about 6 mos after surgery, mostly a fear of suffering seizures, and not knowing how to handle them anymore. After being seizure free for 6 mos, I knew that I was seizure free.
I would recommend that you try the vns first, and if it doesn't help you, and you're a good candidate for surgery, with a high percentage of a good outcome, that you definitely go for the surgery.
Not for my kind of seizures. Have a cousin; never met him in person just computer, he is 3rd cousin on dad's dad's side that arm of family not close, geography. He had the VNS had to have it reversed before it had time to work, infection. Better luck to you.
I've had brain surgery 2006 it has limit the amount of seizures unless I am totally stressed . I also suffer from short term memory loss since had surgery