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Real members of MyEpilepsyTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Awareness During Seizure

Awareness During Seizure

Question: Does anyone hear things around them when having a seizure. I think I just had one but seem to be aware of what’s happening. Just had trouble talking? Thank you for any input.

A MyEpilepsyTeam Member said:

There have been many times where I swear i was watching tv or doing something, and a family or friend would alert me that I Seizured.

posted over 4 years ago
A MyEpilepsyTeam Member said:

An absence seizure is scary- you're aware but can't speak and nothing makes
sense. The connection tween the two halves of the brain is interrupted and the
usual human consciousness that gives us the ability to speak, understand etc is
on hold. Like a dream everyone has different feelings or sensations.
Keep in mind that it's temporary, will pass and you'll feel normal afterwards. Best
thing for me is that I know what's happening- I'm having a seizure. Not a vision from
above or something I can comprehend so I don't try to. My brain is having a little
problem but soon I'll be fine. Certainly better than a heart attack!
.

posted over 4 years ago
A MyEpilepsyTeam Member said:

One of my TC’s, just before going completely out and down some stairs, I couldn’t speak but was totally conscious. Depends on which sensory part of the brain is being affected; speach, hearing, etc. It’s a terrible feeling when you can’t SAY to anyone present that you’re in serious trouble.

posted over 4 years ago
A MyEpilepsyTeam Member said:

Hi @A MyEpilepsyTeam Member & @A MyEpilepsyTeam Member, I would totally recommend against taking any extra meds unless you talk it out with your Dr as I’m speaking from experience! I was simply taking my prescribed dosage, nothing extra, and became seriously toxic on one of my anticonvulsant meds which caused me to end up in a coma for a number of days - no one was monitoring the levels of meds in my blood. I would never mess with my meds off my own bat in case anything like this ever happened again.
I also decided once to up a dose of a pain med I was on as I had been on a much higher dosage in the past and again almost died! It really isn’t worth the risk in upping or in anyway playing around with your meds yourself - it can be WAY too risky.
Just telling you what has happened to me - please don’t make the same silly mistakes that I have made in the past. It’s much better to talk it out with your doctor than dicing with too many risks.

Hope you are feeling better in yourself in the very near future. Keep your chin up,

Loads of hugs,
@A MyEpilepsyTeam Member

edited, originally posted over 4 years ago
A MyEpilepsyTeam Member said:

I have tonic clonic but I’ve had brief periods of awareness during the seizure...I can understand what’s being said to me but I can’t respond...usually those ones don’t end up making me as tired and out of it the next day.

posted over 4 years ago
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