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A MyEpilepsyTeam Member asked a question 💭
Pasadena, CA

Question: Does anyone hear things around them when having a seizure. I think I just had one but seem to be aware of what’s happening. Just had trouble talking? Thank you for any input.

November 22, 2017
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A MyEpilepsyTeam Member

There have been many times where I swear i was watching tv or doing something, and a family or friend would alert me that I Seizured.

November 22, 2017
A MyEpilepsyTeam Member

I just came out of sz in a ER , I couldn’t form words. The ER doc. On call said that wasn’t a sz! That pissed me off. I left as soon as possible. My Epileptologist thought that was strange, they should assessed you w/ EEG before they say it is fake! Maybe she was overworked?

May 12, 2023
A MyEpilepsyTeam Member

No awareness during seizures are absence seizures. I have them occasionally. I really wish there was a medication that was targeted to stop those seizures.

February 7, 2024
A MyEpilepsyTeam Member

I’ve been told that I seem like I’m alert and oriented, but very combative and cursing a lot. I have no memory of it.
These are focal aware seizures ( left medial temporal lobe ) and gran mal seizures. I happened to start having clusters of focal aware seizures around Dec. 16th. My daughter appropriately called the ambulance for me. Well, as I was later told, when I became combative inside the ambulance- the EMT called for the police. Per my daughter, they didn’t believe I was having seizures. They thought I was on drugs. But I did make it to the ER. The doctor there checked my blood sugar and came to the same conclusion with no further tests. Then I was discharged home with paperwork on how to get assistance for drug issues.
Fortunately, my daughter and sister took me to another ER. There I was diagnosed for the 3rd time being in status epilepticus. I was admitted for 5 days. I think I have memory starting on my 3rd hospital day.
I was an RN for over 20 years before I had to stop working. Healthcare workers in my state are just not educated on epilepsy enough. It’s very scary.

January 7, 2024
A MyEpilepsyTeam Member

When I am having a seizure that I am aware of, sometimes I can’t find the right word I want to use when speaking.

November 8, 2023

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