Has Anyone Seen A Neuro-endocrinologist? I'm In Canada, And They Seem Rare (if In Existence At All). | MyEpilepsyTeam

Connect with others who understand.

sign up Log in
Resources
About MyEpilepsyTeam
Powered By
Real members of MyEpilepsyTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
Has Anyone Seen A Neuro-endocrinologist? I'm In Canada, And They Seem Rare (if In Existence At All).
A MyEpilepsyTeam Member asked a question 💭

Women could benefit from a neuro-endocrinologist (partic those who have catamenial seizures). If I could get a specialist to understand my stomach, I think my seizures would be much better.

posted November 2, 2017
•
Be the first to like/hug
A MyEpilepsyTeam Member

They 'do' exist, but I have been unable to find one. I know Dr. Alan Jacobs is a neuro-endocrinologist, but also that he lives in the US (not Canada like me).

I've a friend in Alberta who's a neurologist. She also tells me they exist, but I'm unable to find one in Newfoundland & Labrador. Heck, I'm struggling to see my epileptologist these days (we've only 1 epileptologist in my province)!

I also know that CLAE (Canadian League Against Epilepsy) is having a meeting in NL in September. It will be a true test to see if there are any in Canada. Many specialists 'will' be there - including neuro-endocrinologists if they're in Canada. I volunteer with Epilepsy Newfoundland & Labrador, so I intend to be there.

I'll try to update this in September!

posted July 8, 2018 (edited)
A MyEpilepsyTeam Member

For women w/ catamenial seizures, there's a connection to progesterone and estrogen levels and seizures. I often find neurologists know little/nothing about these connections. Also, endocrinologists often know little about the 'seizure' aspect of hormone irregularity. Neuro-endocrinologists would be knowledgeable on each... but they are rare. Unsure if there are even any in Canada

posted November 3, 2017
A MyEpilepsyTeam Member

This is SO helpful!! My seizures are directly linked to my menstrual cycle, and present in a way that is not at all typical to any kind of seizure my doctors have observed. I had no idea that a Neuro-endocrinologists existed.

posted April 1, 2018
A MyEpilepsyTeam Member

The pituitary gland is in the brain and this controls most hormones in the body. I have never heard of a Nuero-Endocrinologist didn't even know they existed

posted November 6, 2017
A MyEpilepsyTeam Member

No, I didn’t know there was such a thing but I’m definitely checking into it. What is the connection with the brain, the endocrine system, and epilepsy?

posted November 2, 2017

Related content

View All
Has Anyone Seen An Epilepsy Nurse ?
A MyEpilepsyTeam Member asked a question 💭
Can You Have Seizures At Night And That Would Make You Severe Fatigue?
A MyEpilepsyTeam Member asked a question 💭
Swelling Of Hands And Feet On Oxcarbazepine
A MyEpilepsyTeam Member asked a question 💭
Continue with Facebook
Continue with Google
Lock Icon Your privacy is our priority. By continuing, you accept our Terms of use, and our Health Data and Privacy policies.
Already a Member? Log in