VNS | MyEpilepsyTeam

Connect with others who understand.

sign up Log in
Resources
About MyEpilepsyTeam
Powered By
Real members of MyEpilepsyTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
VNS
A MyEpilepsyTeam Member asked a question 💭

I had the Vegas Nerve stimulater(VNS) Surgery done on October1,15, ever since then after a month or two it wasn't really working an started causing me breathing, weezing an talking horsey, so Im gonna have surgery done this November 20,17 to get it taken out cause my new Neurologist an my Primary Care Doctor feel an think that's the best thing to do. I feel the same cause I feel so uncomfortable with it. It doesn't work when I catch any seizures😓😥😢😔, it's doesn't calm them down either. It… read more

posted October 24, 2017
•
View reactions
A MyEpilepsyTeam Member

No side effects here. VNS has been a blessing for me. Before I was having 5 seizures a week. It has greatly reduced the amount of seizures I have altogether.

posted October 26, 2017
A MyEpilepsyTeam Member

There made in Texas and for the first 3 months i had mine i coughed talked funny it didnt help but after 4 months it stop except when it goes off i still have a hard time talking for a few minutes but it did start slowing my down from 10 aday to now I have 3 a every 2 or 3 months

posted October 25, 2017
A MyEpilepsyTeam Member

Sorry to hear that. I can tell you one thing. Your horse voice and wheezing is from the VNS . It happened to me to then when my body adapted to it it wasn’t a problem. At the end before my VNS died out, it was at full strength.

I didn’t even bother replacing the battery of the VNS. My Dr. And I agreed , it wasn’t working for me.

The best thing I can tell you, is give it some more time and give it a year or even wait until your Dr. Gets it up to its max power which ever comes first. It last roughly about 5 years when the battery dies. When that time comes you and your Dr. Can decide , whether or no to continue your VNS.

posted October 24, 2017
A MyEpilepsyTeam Member

@A MyEpilepsyTeam Member: It feels positively amazing. For over 40 years, life has continually changed beyond any foresight. Enjoy the New Year

posted January 3, 2018 (edited)
A MyEpilepsyTeam Member

I see a epileptologist she is amazed at what some neurologists do with the vns. My voice was bad at first she changed the pulse width & I’ve had no problems since. Many normal neurologists unfortunately aren’t properly trained for the vns. Mine has been on a year & my setting is just now @1.5 the vns is supposed to take years to possibly help. However it doesn’t always work for everyone good luck

posted October 30, 2017

Related content

View All
I Would Like To Know How Many People Have Tried A RnS Or VnS Implant. I Was Wondering What The Results Were. Please Let Us Know Results. Th
A MyEpilepsyTeam Member asked a question 💭
For People Who Have VNS And/or RNS
A MyEpilepsyTeam Member asked a question 💭
His Awaiting An Appointment For Vagal Nerve Procedure Has Anyone Had It Done And Does It Work
A MyEpilepsyTeam Member asked a question 💭
Continue with Facebook
Continue with Google
Lock Icon Your privacy is our priority. By continuing, you accept our Terms of use, and our Health Data and Privacy policies.
Already a Member? Log in