I had the Vegas Nerve stimulater(VNS) Surgery done on October1,15, ever since then after a month or two it wasn't really working an started causing me breathing, weezing an talking horsey, so Im gonna have surgery done this November 20,17 to get it taken out cause my new Neurologist an my Primary Care Doctor feel an think that's the best thing to do. I feel the same cause I feel so uncomfortable with it. It doesn't work when I catch any seizures😓😥😢😔, it's doesn't calm them down either. It… read more
No side effects here. VNS has been a blessing for me. Before I was having 5 seizures a week. It has greatly reduced the amount of seizures I have altogether.
There made in Texas and for the first 3 months i had mine i coughed talked funny it didnt help but after 4 months it stop except when it goes off i still have a hard time talking for a few minutes but it did start slowing my down from 10 aday to now I have 3 a every 2 or 3 months
Sorry to hear that. I can tell you one thing. Your horse voice and wheezing is from the VNS . It happened to me to then when my body adapted to it it wasn’t a problem. At the end before my VNS died out, it was at full strength.
I didn’t even bother replacing the battery of the VNS. My Dr. And I agreed , it wasn’t working for me.
The best thing I can tell you, is give it some more time and give it a year or even wait until your Dr. Gets it up to its max power which ever comes first. It last roughly about 5 years when the battery dies. When that time comes you and your Dr. Can decide , whether or no to continue your VNS.
@A MyEpilepsyTeam Member: It feels positively amazing. For over 40 years, life has continually changed beyond any foresight. Enjoy the New Year
I see a epileptologist she is amazed at what some neurologists do with the vns. My voice was bad at first she changed the pulse width & I’ve had no problems since. Many normal neurologists unfortunately aren’t properly trained for the vns. Mine has been on a year & my setting is just now @1.5 the vns is supposed to take years to possibly help. However it doesn’t always work for everyone good luck