Did Anyone Have A Shorter Or Harder Time When Coming Off A Medicine. | MyEpilepsyTeam

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Did Anyone Have A Shorter Or Harder Time When Coming Off A Medicine.
A MyEpilepsyTeam Member asked a question 💭

I'm coming off of Dilantin. What was the experience like when you came off one of your seizure meds?

posted September 30, 2017
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A MyEpilepsyTeam Member

They wein u off slowly. Example when i came off Tegretol, and started with a startet kit for Lamictol, as i increased my Lamictol to a therapeutic range, my tegretol was then out of my system, by weined off slowly. But you have to trust what ever meds u take or replace

posted October 1, 2017
A MyEpilepsyTeam Member

When I was moved from Epilim to kepra too many toxins built up in my body and I lost all balance, couldn't walk straight, couldn't hold anything in my hands as I was shaking that badly and I couldn't talk properly either. It is a small price to pay but getting out the other side was hard.

posted October 1, 2017
A MyEpilepsyTeam Member

When the doctors tried to reduce my medication my seizure rate increased dramatically. So they decided to only change those that severely damage certain internal organs - liver, kidneys, heart, bowels. But looking at the medication list I am on most of my organs are going to be damaged by them some where down the line. I guess it's a small price to pay for keeping the brain ticking over. Hopefully medical science will advance soon so these side effects will not happen.

posted October 1, 2017
A MyEpilepsyTeam Member

Well depends on the type of medication itself and how they ween you off. Different medications interact differently with your body. When is was on a very high dosage of urbanol as a teenager but I really drank a high dosage I struggled to get off it

posted September 30, 2017
A MyEpilepsyTeam Member

I never tried it but it doesn't seem very healthy. I hv to keep my protein high. But I do it by increasing my protein at night, eating protein snacks like cheese and nuts and also I drink a protein shake in the morning. My other meals are normal and balanced with plenty of veggies and fruit. No caffeine or alcohol.

posted September 30, 2017

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