I have asked my sons neurologist but he didn't seem concerned. However, when he has a grand mal he struggles to breathe so it makes sense to me that anything in the mouth could hinder the breathing process.

I don't know about retainers though I had knocked out and swallowed a tooth during seizure. My dentist wasn't happy about putting a denture because of the risks you mentioned. What she wanted to do is a clear mouth guard contraption with a tooth painted on it! I ended up getting a little denture it has wires that holds it in position. I never wear it when sleeping or when not going out in public. Has the orthodontist dealt with other children with epilepsy? They might be the ones to ask

Thanks, I talked to the orthodontist today and he said not to worry about a retainer coming loose and choking her.

i had a retainer that i take out in the evenings, from 2 grade-4 or 5 grade, and having seizures seance i was 5 year old. when i was having a seizure my braces stayed in place every time.

Thank you both. Yes the gasping, wheezing, coupled with foaming at the mouth kind of fresked me out at the thought of a retainer.