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Real members of MyEpilepsyTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
A MyEpilepsyTeam Member asked a question 💭
Sydney, AU

Does anyone else feel like there losing their mind always feel out-of-it and kinda like your drunk/ on "something" I don't know how to explain this I just feel like I'm going crazy with my mini episodes I see things in my head and I can't Focus or remember anything
And no I'm not on any medications I had to stop taking them because nothing was working for me and only made everything in my life so so unbearable i just couldn't do it anymore
I'm just so lost at this point I don't find life… read more

August 13, 2017
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Answer Summary

Members responded with deep empathy to someone feeling like they were losing their mind, describing foggy thinking, feeling drunk without... Read more

Members responded with deep empathy to someone feeling like they were losing their mind, describing foggy thinking, feeling drunk without drinking, and struggling to enjoy life while managing seizures without medication. Many community members described similar experiences, including memory loss after episodes, being mistaken for being drunk or on substances, and the emotional weight of feeling alone and misunderstood by others including doctors. A recurring theme was that these feelings are shared by many in the epilepsy community, with members encouraging self-compassion, writing thoughts down during episodes, and reaching out for connection when feeling low.

A MyEpilepsyTeam Member

Try writing the weirdness in your head out as you think about it. This way you won't be able to forget it. We are all alone inside, crazy is a perception of our own making. And remember crazy is not necessarily a bad thing. It is how we combat the ugliness in our lives; with self pity, loathing and depression or to accept the weirdness as a unique characteristic that is a real pain in the ass. Battle but don't blame yourself after defeats; strive to be happy but don't fight a good cry and most of all, love yourself, you are not a mistake, Mikel

August 13, 2017
A MyEpilepsyTeam Member

I lost my mind a long time ago. I find it really hard to enjoy life at times as well. It really sucks cause I'm alone most of the time and don't feel like doing things a lot of the time. I wish I had a magical answer for you. I feel as lost as you.

August 13, 2017
A MyEpilepsyTeam Member

Life is awesome never give up (Phone number can only be seen by the question and answer creators) if you ever feeling low just call or text and some how some way we LL make you laugh or cry a little probably both, but never give up never give in. Keep fighting!

November 21, 2017
A MyEpilepsyTeam Member

@A MyEpilepsyTeam Member I completely understand I can relate to all of that shcool was very difficult for me and work was well when I was working was very hard and I get confused easily which just makes everyone else feel annoyed with you but you just can't help it I also feel like with every episode everything is getting worse I
Thought this was just me

August 15, 2017
A MyEpilepsyTeam Member

I ended up losing a job because I couldn't remember the need to know, day-to-day details of it. No memory makes school so much harder, too. And I feel like it gets worse for me with every seizure. It's not fair.

August 15, 2017

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