Have You Ever Seen A Video/film Of Yourself Having A Seizure? | MyEpilepsyTeam

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Have You Ever Seen A Video/film Of Yourself Having A Seizure?
A MyEpilepsyTeam Member asked a question 💭

My parents and my partner have obviously explained what happens to me and what I do during a seizure but half of me is curious to see it. I have often thought about asking them to film it when it happens but then the other half of me thinks I might regret it after and be upset by it? Has anyone else ever watched a film of themselves having a seizure and how did you feel afterwards?

posted August 11, 2017
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A MyEpilepsyTeam Member

I have. I had a one week EEG . Every day they would reduce my meds so much hoping for a good seizure. I was getting Dow to my last couple of days and ,I still haven't had any big seizures. I had some minor ones. So they came to my room to ask if there was anything that would trigger any seizures. I new that I couldn't drink regular pop because it makes me seizures, but anything diet is ok. So I ask for a regular Dr. Pepper . They brought me 2 cans I had finished my first can and was starting on my second. Next thing I new, there were nurses and Dr.s in my room . I finally gave them what they wanted. The day of my departure from the hospital, I had ask if if I could get a recording of my big seizure. A few minutes later they come out with a VHS recordable tape. When I got home I watched. Just watch everything , I thought that's can't be me. It was my body, it was like watching the Exorcist the way my voice sounded and the movements my body was doing.

posted August 12, 2017
A MyEpilepsyTeam Member

I seen it once in my youth recorded @ the hospital so my neurologist could see the seizures first hand rather than hearsay. More recently I had an EEG like LizN described. My only difference was the initial "test " they being the know-it-alls that they are, tried to provoke a seizure and couldn't do it but once they asked me my triggers...viola a seizure! Reflecting back on it, stand your ground with ANYBODY trying to correct YOU on your condition.

posted August 15, 2017
A MyEpilepsyTeam Member

Yes I have and it caused another seizure

posted December 31, 2023
A MyEpilepsyTeam Member

I don't like being in the hospital for days for eeg

posted August 15, 2017
A MyEpilepsyTeam Member

eeg in hospital/they saved all the f and gave it to me. Just don't remember much. Every one says I look afraid. I seen it just look out of it.

posted August 12, 2017

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