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A MyEpilepsyTeam Member asked a question 💭
Waycross, GA

I was just told I didn't have a seizure because there was no elevated heart rate. Mind you, this was a nurse. A cardiacs nurse. So, anyone else with Epilepsy that does not an elevated heart rate.

August 9, 2017
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Answer Summary

Members pushed back on the claim that an elevated heart rate is required to diagnose a seizure, with many sharing from personal experience... Read more

Members pushed back on the claim that an elevated heart rate is required to diagnose a seizure, with many sharing from personal experience that heart rate during seizures can vary widely. Several members noted that their heart rate sometimes spikes, sometimes stays normal, and one member cited that roughly 82% of people with epilepsy show an increased heart rate, meaning it is common but not universal. A recurring theme was that seizure responses differ by type and by person, and that nurses or doctors outside of neurology may not always have the full picture of epilepsy.

A MyEpilepsyTeam Member

To add to the group here...
I've had a seizure with zero increased heart rate and others that were high so...
Who can say what your body does 100% of the time?

August 10, 2017
A MyEpilepsyTeam Member

Yes me hun

August 26, 2017
A MyEpilepsyTeam Member

Mines are up and down sometimes my heart rate is fine other times its a bit faster

August 14, 2017
A MyEpilepsyTeam Member

@A MyEpilepsyTeam Member
Yes...this is why all the newer VNS implants are made to detect your increased heart rate. Mine goes off a LOT more than every 5 minutes ( which means it lasts for a full minute instead of 30 seconds at a time) and at a higher level of electricity. I CAN feel the increased "dose" going off a LOT. I have to wonder how many seizures it's blocking/preventing.

August 13, 2017
A MyEpilepsyTeam Member

You can have a seizure with a low heart rate, high heart rate as in infection or anything in between. They should do their homework.

August 9, 2017

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